Linking Diabetics Coast 2 Coast
Dr. William H. Polonsky chat transcript 3/5/08
*** (18:03):Welcome to Chat with Dr. William H. Polonsky , William !
William says to (18:03):
Hello. This is Dr. Polonsky. Took me a bit of time to figure out how to log in.
AllisonBlass says (18:04):
Hey Dr. Polonsky!
Lloyd says to (18:04):
Welcome
kitter says to (18:04):
Hi Dr Polonsky
MeadowLark says to (18:04):
Hi Dr!
John4159 says to (18:04):
ya gotta wonder. It's a stressful job. They prolly need their own burnout book.
Stump86 says to (18:04):
welcome Dr. Polonsky
Jeff says to (18:04):
Doctor Hello
AllisonBlass says (18:04):
I guess we'll get started now.
patti says to (18:04):
hi dr
Tiger Lily says to (18:04):
howdy Dr Polonsky
Jeffrey says to (18:04):
hey doc
William says to (18:04):
Hi All!
kitter says to (18:04):
crud, have we got time to get coffee before we start?
Tiger Lily says to (18:04):
lol
kitter says to (18:04):
anybody want one?
Lloyd says to (18:04):
email me one
AllisonBlass says (18:04):
Welcome everyone to the Diabetes Burnout chat with Dr. William Polonsky. Dr. William H. Polonsky, Ph.D., CDE is a licensed clinical psychologist, and the Behavioral Diabetes Institute's Founder and Director.
MeadowLark says to (18:04):
me . only I cant have nay anyway
AllisonBlass says (18:05):
Tonight we're going to be discussing something that most people with diabetes will eventually face... the inevitable burnout with this rigorous disease. Thanks for joining us!
MeadowLark says to (18:06):
how do we deal with burnout? I get depressed and recognize emotional eating:9 it stink.s.. and i'm addicted to bread and grains :(
AllisonBlass says (18:06):
Feel free to chime in with questions at anytime, but please allow time for Dr.
Polonsky to respond.
AllisonBlass says (18:06):
We don't want to overwhelm him.
William says to (18:06):
And be patient with me. I'm a one-fingered typist!
NoVaType1 says to (18:07):
Thanks for chatting with us Dr. Polonsky
kitter says to (18:07):
people type with more than one finger?!
chelsea says to (18:07):
that is kool so am i
Jeff says to (18:07):
Try it with some of our callouses...
patti says to (18:07):
my question for tonight is it good to take insulin, and metformin along with glipizide, lipitor, nexium and synthroid cause i started almost three weeks ago
William says to (18:07):
I'd love to hear your thoughts about burnout. What seems central is when you feel out of control. You feel like you are putting in effort to your diabetes, and not getting great results. Make sense?
AllisonBlass says (18:07):
Patti, this chat is for diabetes burnout, not for medical questions.
Tiger Lily says to (18:07):
i take all of that except glipizide and nexium
AllisonBlass says (18:08):
Please ask your doctor about those issues or wait until the end of the chat.
AllisonBlass says (18:08):
Everyone, please stay on topic. Wait until the end of the chat for other issues. Thanks!
kemakinson says to (18:08):
Yes, it sounds very familiar, although I've made major progress in the past few months!
William says to (18:08):
so MeadowLark, how can you tell if you are doing well enough with your diabetes? or anybody else chime in!
MeadowLark says to (18:09):
putting wrong foods in my mouth is as bad as an addict:( depression with bad numbers... Hardtime regaining control.
Jeff says to (18:09):
Dr. been a diabetic since was 3.... nearly 4 decades now (almost)
John4159 says to (18:09):
I always found when my sugars were the whackiest, when I felt the most out of control, is when I felt the most burnt out
AllisonBlass says (18:09):
I always feel the most burned out when I'm taking care of my diabetes on my own... when I was working with Gary Scheiner or when I was growing up it didn't seem as bad.
SteveRRR says to (18:09):
That is long time, Doc.
NoVaType1 says to (18:09):
So my question is relatively simple. Do you think that diabetics are more prone to burnout due to life stresses plus diabetes as they're unable to balance out a good life balance or are they more burned by their disease?
MeadowLark says to (18:09):
When my numbers are good.. I’m energetic and can happily play with my kids.
Lloyd says to (18:09):
I can speak to the other end. I am t2 14 years, and have never been further from burnout. In my case, that is because of the huge level of success I have had. I think it proves your point in another way.
patti says to (18:09):
well because i'm tired of all these meds thats a burnout
kemakinson says to (18:09):
If I'm reaching the goals that I have set and have shared with my endocrinologist - reasonable manageable goals
Jonah says to (18:10):
I had great numbers and felt crappy last year, I have ehh numbers and feel pretty good this year
Stump86 says to (18:10):
I have a question as well: What would you say are "symptoms" of burn out, if there are any, and how do you suggest someone would avoid them and stay on track?
chelsea says to (18:11):
i do not like test in 15 mints after a low and my dad tells me to but i just do not learn most of the times
Jonah says to (18:11):
I don't test 15 minutes after a low because it's never up by then- I wait 25-30 minutes.
William says to (18:11):
OK. So one thing we know-- you can overcome burnout in all sorts of ways. Jonah may be a bit unusual, because the first step (Stump) is do you have clear goals so that you can actually tell when you're being successful. Numerical goals!
Jeff says to (18:11):
How do I tell when DIABETES is the issue, and when its something that ANYONE can help me with???
SteveRRR says to (18:12):
It never stops. I been living with it for 42 years. As hard as I've tried, there were always those no-fun lows, and eventual retinopathy and kidney transplant. Some days I just come home from work and say" just go to bed, I don't feel like playing"
John4159 says to chelsea (18:12):
good question Jeff, the D is always there bothering us
patti says to (18:12):
good question jeff
MeadowLark says to (18:12):
My number goal is to stay between 70 and 120. I just cant seem to get there and stay. depressed and then mess happens.
AllisonBlass says (18:13):
MeadowLark: Maybe you should be more flexible with your goal and work your way up... say "For 6 months, I want 50% of my blood sugars to be 70-120 target" and then re-evaluate.
SteveRRR says to (18:13):
As best as I try, I am not as smart as a working pancreas. Working pancreas doesn't have to think about its job; it just does it.
Jonah says to (18:13):
I set goals like wake up below 150 80% of the time and below 300 100% of the time.
William says to (18:13):
There are a lot of great comments going by. Let's stay with the number stuff just for a minute. Meadow, what is your A1C goal? You can drive yourself crazy trying to have perfect blood sugars all the time. And the goal of 70 -120 is too hard!
MeadowLark says to (18:14):
since my diagnoses of diabetes.. feeling deprived. etc. it was bad enough when I was homeless. not getting to eat and now I have food am not allowed to eat.
William says to (18:14):
It is a recipe for feeling like a failure.
Lloyd says to (18:14):
I got my A1c down by reducing it 7 times in a row. Small steps
William says to (18:15):
small steps indeed! I agree.
MeadowLark says to (18:15):
my last A1c was 6.8.. I'm due for one but cant afford to go. co pay cost too much.
Jeff says to (18:15):
Ive met dozens of D folks online, for years. Some of us try to hard at the perfect range
John4159 says to chelsea (18:15):
ease up on the A1C and stress of complications takes over. There's nothing as stressful as an eye full of blood.
Tiger Lily says to (18:15):
thank you John
MeadowLark says to (18:16):
I will lose the ins in the end of May anyway.
SteveRRR says to (18:16):
yuk
landileigh says to (18:16):
and fear of complications makes your stress levels and numbers go up
John4159 says to (18:16):
there's more stress ML
Lloyd says to (18:16):
A1c of 8.7 8.5 7.8 6.9 5.7 5.5 5.3 4.9
MeadowLark says to (18:16):
Thankyou
William says to (18:16):
so meadow if your A1c is in a safe place, and you aren't having any dangerous lows, AND you're not letting diabetes control your life-- then that is a good measure of success!
kitter says to Jeff (18:16):
WOW Lloyd
landileigh says to (18:16):
HEY! it's Lloyd!
Jonah says to (18:17):
I don't feel like there is such a thing as a safe place with diabetes.
Lloyd says to (18:17):
and I was happy when leaving the Dr each time, because it was an improvement
John4159 says to chelsea (18:17):
a1c of 7.3 6.4 6.3 6.4 6.0 I hear ya Lloyd
Jeff says to (18:17):
Doctor, nobody has done the background studies, papers, effects on STRESS on
diabetics T1 or T2. If they had there would be a LOT more folks with your credentials and experience around.... no?
William says to (18:17):
Then there is the issue (brought up here) that you have to be eternally vigilant. That there are no vacations from diabetes. It is a fulltime job, with lousy pay, and no vacations.
kemakinson says to (18:18):
It's Kate from Seattle...I e-mailed you a few days ago
SteveRRR says to (18:18):
pay is we can stay alive
landileigh says to (18:18):
I want to say that I feel with all of the online social networking going on (such as this chat here), your quote of "Feeling connected to others, feeling that someone else grasps what living with diabetes is really like for you, feeling that someone cares"
William says to (18:18):
Jeff, there have been lots of studies about stress and diabetes, but still you're right-- there are few folks like me working in this field.
landileigh says to (18:18):
THAT is what these people here are all ABOUT!
William says to (18:18):
Hi Kate. And see you soon!
Alex McTaggart says to (18:18):
Hi All
kemakinson says to (18:18):
I have a story about stress and diabetes - it's unbelievable what cortisol does to your entire body, let alone your diabetes
Jeff says to (18:18):
Could count them on one hand.... most in Boston at Joslin, no?
John4159 says to landileigh (18:19):
Right on landileigh. We do much better with everyone else cheering for us
William says to (18:19):
Jeff, that's where I used to work. Yes, a fair number at Joslin.
landileigh says to (18:20):
I think the connections on the different boards and blogs makes it so that if i have a bad day, i just know tomorrow will be different
William says to (18:20):
And yes, good social support. That's THE secret. When you have someone rooting for you, it does make all the difference.
Alex McTaggart says to (18:20):
Hey Dr..how does one find a GOOD psychologist if needed..I went through a massive depression about 2 yrs ago due to being in a coma..I am out of it now..but every so often I just don't wanna do anything
Jeff says to (18:20):
Was Diabetic nearly 25 years before someone told me I was allowed to take a "day off" (who had credentials in Psych/Social work) I was stunned at the realization
kitter says to (18:21):
Landileigh, I agree there... I'm on a t1 parents board, and the kids help me see that I don't have it so bad. A few bad days don't mean Its always gonna be bad
John4159 says to (18:21):
I meet so many diabetics who refuse help from others. They want to do it alone. Hide in their own little worlds. How we reach them is a mystery to me. I've tried.
Tiger Lily says to (18:21):
what did he mean 'day off' ????
William says to (18:21):
How to find a good psych? Not easy. Only answer is to ask everyone you know, and then try to visit 2 or 3. Pick the one you feel you can trust. I wish there was a better way.
Tiger Lily says to (18:21):
my insurance pays for 6 visits to a psych
Tiger Lily says to (18:21):
:(
Tiger Lily says to (18:21):
per year
Alex McTaggart says to (18:22):
thats tough to do since most GP's will not want to step on the toes of other DR's and only allow ya one shot here in Canada
Jeff says to (18:22):
he was a She. She suggested, ONCE in a great while... let someone else DO the test FOR me.... let our partners do the shot (if they are willing)
William says to (18:22):
"Day off". I agree that everyone needs and deserves a regular diabetes cavation. BUT it needs to be a safe, time-limited one. I bet some of you have figured out how to do that. Anybody?
kemakinson says to (18:22):
The most impt thing is that they understand diabetes and all of the emotional baggage that comes along with a 24 hour disease!
Tiger Lily says to (18:22):
not me!
SteveRRR says to (18:22):
no day off
Lloyd says to AllisonBlass (18:22):
I eat 150 carbs on my birthday, instead of 75
Jonah says to (18:22):
Yeah, having someone else manage your diabetes is great. My mother did that once. But I don't have anybody willing to help anymore.
Tiger Lily says to (18:23):
lol
Jeff says to (18:23):
Cut back the testing from 7 to the absolute minimum just for one day...
landileigh says to (18:23):
you let someone else count the carbs, and tell you how much insulin, and/or do the shot?
AllisonBlass says (18:23):
Sometimes I test less often, like 2 or 3 times instead of 6 or 7.
John4159 says to (18:23):
I have found that when I know what my body's doing and feel in control, I can take extended time off. I haven't recorded one test in the last 5 months and my A1C is the best ever. I will start working at things again shortly, but knowledge truly is power.
kitter says to (18:23):
I never take a full day off... but I will occasionally take a couple of hours where I just think "eff it", and relax. I don't go overboard, but a couple of hours respite is great... Just to not think about D for a few hours...
Jeff says to (18:23):
never met ya Jonah, but anyone here will glad to do it I'd bet, if you were close my friend!
Lloyd says to (18:23):
It is hard to take time off if you are on insulin
William says to (18:24):
Lloyd gives a good example of a small diabetes vacation. Diabetes is about compromising between doing it perfectly and having a totally spontaneous life. But make it a conscious choice!
Alex McTaggart says to (18:24):
Not testing may work for those of you not on an insulin pump, but for those of us on it we have no choice but to test 5 or more times a day
AllisonBlass says (18:24):
I don't take time off of taking insulin. I bolus for the food and if I feel low or high I test.
AllisonBlass says (18:24):
I am on the insulin pump and it works for me. I don't do it much.
AllisonBlass says (18:24):
But sometimes.
Jeff says to (18:24):
Not that hard
Jeff says to (18:24):
Sure you can... garbage!
kemakinson says to (18:24):
I'm on the CGMS and it's a nice break to be able to rely on something other than
my intuition when it comes to highs and lows, peace of mind at least
SteveRRR says to (18:25):
CGSM here too
AllisonBlass says (18:25):
Alex, you definitely should test 5 times a day no matter whether you're on the pump or not - but I think one day every few months, you can handle it.
John4159 says to (18:25):
A spontaneous life is a general goal of mine. I work hard at my control so I can eat Chinese and drink beer and sleep in till noon
Mandy1469 says to (18:25):
Hey Kitter.
MeadowLark says to (18:25):
how do we deal with the addiction of foods and depression that keeps us eating in a vicious cycle?
Jeff says to (18:25):
Pretend its a sick day ~ use that protocol I would think would do the trick
MeadowLark says to (18:25):
constant hunger....
William says to (18:25):
By the way, if your A1C is not in a safe place, then you may need to think that "vacation"...
MeadowLark says to kiddydoll (18:26):
knowing it is not good to eat.
Jeff says to (18:26):
No more 5 testings, 8, testings, just hummmmmngh... pretend I'm sick, only 2 maybe three... I would think?
John4159 says to (18:26):
small steps. slowly reduce the food and slowly move the feet more
Mandy1469 says to (18:26):
Is it possible to get burned out, when you haven't even been diabetic a full year?
NoVaType1 says to (18:26):
One of the interesting things that I've observed is that the long-term data from type 1s has been that perfect control is best (duh, no kidding) but that data seems to have become my endo's cop-out when dealing with me. Makes me feel like a lab rat.
William says to (18:26):
Meadow, about food addiction. It is like feeling at war with food, isn't it?
SteveRRR says to (18:26):
we are lab rats
John4159 says to Mandy1469 (18:26):
Mandy, the first years can be the toughest
landileigh says to (18:26):
mandy, i know i've been overloaded at times with information and get burned out
William says to (18:26):
Mandy, you are hereby allowed to get burned out as soon as you want!
MeadowLark says to (18:26):
YES!!!! All the time!
Jeff says to (18:26):
Dr. honestly will 1 day make any genuine difference? Provided you/someone is doing them, keep things ~safe~?
kitter says to (18:27):
Mandy, definitely. I think that first year is the hardest, and it can just seem like too much for a while
AllisonBlass says (18:27):
Yeah, I agree. There is not minimum time you need to be diabetic before you can hate it!
AllisonBlass says (18:27):
*no
kitter says to (18:27):
but thats where support boards come into play... they really help
John4159 says to Mandy1469 (18:27):
many teens go off the deep end when dxed
William says to (18:27):
Jedd, will one vacation in your whole life be enough? NO! You need regularly scheduled vacations, like Lloyd's birthday meal...
kemakinson says to (18:27):
pretty sure I hated it day one...but things are on the upswing with my relationship with my diabetes now
SteveRRR says to (18:27):
each of us is also an individual experiment in diabetes management, with so many variables
MeadowLark says to (18:27):
people talk to me in here.. but not on a board.. no answers to my posts.
John4159 says to SteveRRR (18:28):
it's like a fingerprint
AllisonBlass says (18:28):
Oh, I remember something else. Some people have their family or their spouse count carbs and operate the pump for the day, instead of the person with diabetes. That way the diabetic doesn't have to think.
Mandy1469 says to (18:28):
Last time, I thought I was still honeymooning, stopped my insulin for 2 days and ended up in DKA. And I should know better. I'm 29, I should know better!
SteveRRR says to (18:28):
yeah John
AllisonBlass says (18:28):
If I didn't live alone, I would use that.
MeadowLark says to (18:28):
I think .. my depression and fight with this is something they dont want to deal with. only if it is apositeve.
NoVaType1 says to (18:28):
I told her once, I like a variety of food, I don't eat fried foods (13 years now) and she finds new ways to tweak my diet, like no more soy burgers or you eat too much protein. So I limited my protein intake and then she says I need more to eat whole food
SteveRRR says to (18:28):
yuk,, Mandy
John4159 says to AllisonBlass (18:29):
I bet living alone is stressful
William says to (18:29):
Meadow, I think the "vacation" idea may be one solution to food addiction. Pick one food you are at war with, and let yourself have that and enjoy it every once in a while (eat with awareness and enjoy).....
John4159 says to (18:29):
d-wise ;)
Jeff says to (18:29):
Depression is NOT the issue, we have EXCELLENT reason to get burned out! The PERMINANT ashes becomes the problem
Alex McTaggart says to (18:29):
Doc..question for ya...are you a diabetic yourself?
kemakinson says to (18:29):
fiber rocks for keeping you full in between meals...
SteveRRR says to (18:29):
living alone with D is ok
NoVaType1 says to (18:29):
My sugars go through the roof when I get to my endo... my wife (a type 1 too) calls her "Dr. Evil."
kitter says to (18:29):
lol Nova
William says to (18:29):
Meadow, but don't forget to stay safe by adjusting your meds as needed. And you
may benefit by talking to your doc about this...
Mandy1469 says to (18:29):
Blood sugars AND blood pressure!
AllisonBlass says (18:30):
John, yes, sometimes. Mostly it's just annoying. Like this week I was sick and my blood sugars were all over the place, and all I wanted was for my mom to do everything for me... but I had to. :-(
John4159 says to (18:30):
you could try one of these ultra low carb diets
William says to (18:30):
Dr Evil. Love it!
Lloyd says to AllisonBlass (18:30):
"White coat syndrome" :)
Jeff says to (18:30):
That makes the PUMP/test machine MINI-ME???
AllisonBlass says (18:30):
White coat syndrome?
SteveRRR says to (18:30):
that's right, Jeff
William says to (18:31):
Mandy, YES! And blood pressure (and cholesterol, too).
John4159 says to (18:31):
Whitecoats play with rats ;)
Lloyd says to AllisonBlass (18:31):
You get nervous at the Dr, and your bp goes through the roof
NoVaType1 says to (18:31):
My doc is so well loved, that the pharmacy even hates calling her. I just started with a new general practitioner and he nicely said, "I don't refer people to that doctor anymore."
Jeff says to (18:31):
Jeff scampering around his computer desk in protest
Alex McTaggart says to William (18:32):
Dr..you haven't answered my question..are you a diabetic?
landileigh says to (18:32):
I am in Stage 3 CKD, which i had for 2 years before Dxd with Surgically Induced
Diabetes. What can i do to alleviate fear?
NoVaType1 says to (18:32):
Question: Do you see a lot of stress for diabetics who choose to not inform their co-workers of their condition?
Jonah says to (18:32):
How do you talk to people in such a way that they will be supportive rather than critical of your efforts to keep yourself healthy?
William says to (18:32):
Alex, no I'm not. But don't kick me out of here!
Lloyd says to (18:32):
lol
William says to (18:33):
I wish I could respond to everyone!
Alex McTaggart says to William (18:33):
lol no intention too..just wanted to know if you knew what it was like to go through what we do go through on a daily/min by min basis..other than the psych stuff
gina says to (18:33):
EVERYONE GIVE DR. P A CHANCE TO ANSWER YOUR QUESTIONS
Jeff says to (18:33):
Sorry.
gina says to (18:34):
some ppl type fast than others! ;)
William says to (18:34):
Jonah, about how to talk to others, check out www.diabetesmine.com, and search for "etiquette".
gina says to (18:34):
faster
landileigh says to (18:34):
lol, we kinda hit him pretty quick with a series of questions
John4159 says to (18:34):
we're all burnt out :o~(
Tiger Lily says to (18:34):
every time someone types in the room, the screen scrolls down to the current line, so the Dr can't even read back............ slow down!
gina says to (18:34):
dont burnout the doc lol
William says to (18:34):
Why? Because we have a new wallet sized card-- diabetes etiquette for people who don't have diabetes-- and Amy at diabetesmine talks about it.
Jeff says to (18:34):
negative, DEAD but NOT intimidated!!!!
kemakinson says to (18:35):
so let's let Dr. P choose a topic and we'll focus on that...?
landileigh says to (18:35):
i can't wait to see the diabetes etiquette card! it's so cool!
William says to (18:35):
We don't have the cards to distribute widely yet, but hope to within the next few
months...
Jeff says to (18:35):
Fair...
gina says to (18:35):
cards are perfect
Jonah says to (18:35):
So I hand that to people to tell them how to talk to me?
landileigh says to (18:35):
can we talk about fear?
William says to (18:35):
Bless you, ke!
gina says to (18:35):
i could use them to hand out to everyone i know
landileigh says to (18:35):
i've been reading your book about it
William says to (18:36):
Jonah, yes. You might politely say-- "excuse me, but perhaps you don't know the rules about how to behave. You might want to read this.
John4159 says to landileigh (18:36):
What are your fears landleigh?
William says to (18:36):
By the way, rule #1-- don't offer unsolicited advice (about how I should eat, or anything)
landileigh says to (18:36):
Question: I am in Stage 3 CKD, 2 points from Stage 4, which i had for 2 years before Dxd with Surgically
Induced Diabetes. What can i do to alleviate fear?
Alex McTaggart says to (18:37):
hand out cards....how can you do this since every person has a different objective let alone a different approach to lifes situations..no card can handle that..it would have to be the size of the CN Tower
William says to (18:37):
Land, fear about what exactly?
landileigh says to (18:37):
fear of complete dialysis, fear of failure (kidneys)
Jonah says to Alex McTaggart (18:38):
You can edit the card for your own needs- I've done that for how to deal with me for emergency situations.
landileigh says to (18:38):
i'm doing everything i can. my A1c is 6.1
William says to (18:38):
Alex, it is meant to be somewhat funny. It is merely a way to open up a conversation. Odds are that the other person cares and wants to help, but doesn't know how (I know, not always).
AllisonBlass says (18:38):
Alex, they are general cards but you can probably find something that works for you.
SteveRRR says to (18:38):
kidney failed, & I'm still going strong
gina says to (18:38):
thats great Landileigh
Alex McTaggart says to (18:38):
k
landileigh says to (18:38):
steve, did you go through transplant?
SteveRRR says to (18:39):
yes N 05
SteveRRR says to (18:39):
nov
landileigh says to (18:39):
this is going quick, and i can't seem to stop the progression
William says to (18:39):
Gosh Land, but I'd be scared too. I think talking to folks like SteveRR and others is the way to go.
landileigh says to (18:39):
did you do a double k&p?
SteveRRR says to (18:39):
no\
SteveRRR says to (18:39):
i was offered both
SteveRRR says to (18:39):
but stopped with the kidney
Alex McTaggart says to (18:39):
as for the wallet card..do any of you have cell phone with an opening msg..and do any of you have an ICE contact (In Case of Emergency) for emergency personnel listed in your contacts??
SteveRRR says to (18:39):
kidney from sis
SteveRRR says to (18:40):
very close match
Tiger Lily says to (18:40):
yes, i use HOME and HUSBAND for the names on the phone list
landileigh says to (18:40):
even if there is a cure for diabetes, it won't work for me as the destruction of by B-cells was due to the acute pancreatitis
Tiger Lily says to (18:40):
and MY CELL
landileigh says to (18:40):
my daughter is a perfect match
landileigh says to (18:40):
so i wouldn't get a P either
kemakinson says to (18:40):
I keep my logbook in my purse with contact info and a bracelet on my wrist saying
I'm a T1 and on an insulin pump
Alex McTaggart says to (18:40):
good one Tiger
NoVaType1 says to (18:40):
Dr. Polonsky, do you find that couples who are both diabetic fair better than one spouse diabetic relationships.
Jeff says to kiddydoll (18:40):
DR.... is doing everything you can, everything you are emotionally able TO DO, and STILL "loosing" in spite of those efforts.... is THAT "burnout"?
MeadowLark says to (18:40):
just tested.. am 217:(
William says to (18:41):
Nova, that's so rare that it is hard to say. But it sure makes sense (and I have seen a few).
Alex McTaggart says to kemakinson (18:41):
good one
Mandy1469 says to (18:41):
When you get a chance, Doc.,I have a question about fear. I am truly afraid of insulin. The weight gain and I'm so sensitive a little can send me so low, I'll stay high to avoid it. How can I get over that?
MeadowLark says to (18:41):
my doc will never know cuz It will go down before I'm "supposed " to test.
William says to (18:41):
So Many, sounds like you are fearful about lows! Do I have that right?
gina says to (18:42):
Dr. p i am afraid of low blood too
Jeff says to kiddydoll (18:42):
Forgive me who ISN'T?
Mandy1469 says to (18:42):
Lows and the weight gain of the corrections!
bdva50 says to (18:42):
is also scared of them
William says to (18:42):
Fear of hypo's is about losing confidence in your body; you can't trust what it will do next.
gina says to Alex McTaggart (18:42):
mandy, me too
Tiger Lily says to (18:42):
the corrections are small....... the problem comes with premix insulin where you have to eat MEALS to suit the insulin
AllisonBlass says (18:42):
Jeff, some people are so terrified they will actually skip insulin rather than risk it... Most of us are worried about it but we know we need to take it anyway.
kemakinson says to (18:42):
come on, who doesn't love glucose tabs?
landileigh says to (18:42):
exactly! i get the shakes and look like julia roberts in steel magnolias
gina says to (18:42):
lol
bdva50 says to (18:43):
lol
SteveRRR says to (18:43):
no fun
kitter says to (18:43):
eww glucose tabs
Tiger Lily says to (18:43):
ya!
John4159 says to Mandy1469 (18:43):
Mandy, better control is about the only thing that will work. Do you or can you pump?
Tiger Lily says to (18:43):
lol
landileigh says to SteveRRR (18:43):
i'd rather suck on cake gel than eat the tabs
gina says to (18:43):
the weight gain is what makes me go into burnout
kemakinson says to (18:43):
I just ran 3 miles and hit up a granola bar and stayed between 80-105 the whole time
barbara m says to (18:43):
lows can cause serious ramifications, like car accidents
Mandy1469 says to (18:43):
Yeah, that chalky taste really hits the spot!
William says to (18:43):
For lows, certainly CGMS is one great answer, especially when insurance starts covering them regularly.
NoVaType1 says to (18:43):
I do fear lows. My control was pretty close to perfect and then woke up one morning in an ambulance. The new endo, one of two in the area, changed my insulins because she found my regimen "odd." Sure, but it worked perfectly for 12 years.
kemakinson says to (18:43):
grape tabs is where it is at...they work super fast. I fought them for years but now love them
AllisonBlass says (18:43):
I still use juice boxes... I'm five-year-old trapped in the body of a 22 year old.
MeadowLark says to (18:43):
it sounds like almost everyone here is type1.
bdva50 says to (18:44):
strong exercise will drop me from 250s to 70 real quick
William says to (18:44):
Another solution for fear of lows-- check out
href="http://www.bgathome.com">www.bgathome.com. Blood glucose awareness training can help.
landileigh says to (18:44):
i'm not meadowlark
SteveRRR says to (18:44):
CGMS & glucose tabs are what I use and they've helped no end with lows
landileigh says to (18:44):
i'm an "other"
John4159 says to Mandy1469 (18:44):
is bga back up?
Mandy1469 says to (18:44):
I'm so new, my doc is not in favor of a pump for me yet. But I use an insulin pen,
and it's hard to dose when a whole unit can mean the difference in a hypo.
kitter says to (18:44):
lol Allison. I love juice boxes, but my brother likes to take them, not tell me, and not replace them, then yell when i hypo.. jerk
SteveRRR says to (18:44):
Sorry ML
landileigh says to (18:44):
mandy, see if you can get a NovoJunior pen
Tiger Lily says to (18:44):
Mandy........ get a 1/2 unit pen
SteveRRR says to (18:44):
But you are still diabetic
Tiger Lily says to (18:44):
snap
MeadowLark says to (18:45):
I'm sick of diabetes... and wish this crap was over.. I guess that is why 'jm out of control. definitely burntout.
Tiger Lily says to (18:45):
Humalog makes a 1/2 unit pen too
Mandy1469 says to (18:45):
They make 1/2 unit pens?
landileigh says to MeadowLark (18:45):
it's never over meadow
Tiger Lily says to (18:45):
yes
Tiger Lily says to (18:45):
very handy for those of us on low doses
Tiger Lily says to (18:45):
and YES 1/2 a unit CAN make that much of a difference
gina says to William (18:45):
CAN WE GIVE DR. P A CHANCE TO CATCH UP
landileigh says to Mandy1469 (18:46):
mandy, your doctor can get ya one
bdva50 says to (18:46):
sure
gina says to William (18:46):
ITS MOVING A LITTLE FAST
Jeff says to (18:46):
:)
William says to (18:46):
You guys are great, and enthusiastic!
John4159 says to Mandy1469 (18:46):
I was in a similar boat Mandy. I've been 911'd 9 times. Now that I'm pumping and know pretty much exactly where my BGs are and where they are headed, I'm hoping that's all behind me.
gina says to William (18:46):
Dr. p you have the floor
Alex McTaggart says to (18:46):
Why don't we do what someone said before..let the Doc choose the topic for us to discuss rather than hammer him with everything
Jeff says to (18:46):
Fight or give up makes one giggle....
William says to (18:47):
I'm not sure what to respond to next.
Alex McTaggart says to (18:47):
Why don't we do what someone said before..let the Doc choose the topic
for us to discuss rather than hammer him with everything
bdva50 says to (18:47):
agrees
gina says to (18:47):
great idea
Jeff says to (18:47):
(6)
kemakinson says to (18:47):
OK...he has the floor - pause yourselves!
William says to (18:47):
Like you all need a lecture!!! I don't think so. Hmm....
Jeff says to (18:47):
Wrong gif, sorry
NoVaType1 says to (18:47):
Might it easier to start each question with a "?" to make it easier to answer?
bdva50 says to (18:47):
will hush
kiddydoll says to (18:48):
woooo overwhelming
William says to (18:48):
Burnout is all about feeling out of control. Here are some solutions, though not for
everyone.....
kitter says to (18:48):
gotta run, people... Thanks Dr Polonsky
gina says to (18:48):
how bout you guys give me the question in PM and i will ask
gina says to (18:48):
i will filter it
bdva50 says to (18:48):
that works too Gina
Alex McTaggart says to (18:48):
k
gina says to (18:48):
start PMing me
William says to (18:48):
1. Don't do diabetes alone. You need folks who are rooting for you (and that's why
you are here).
landileigh says to (18:49):
it's why i became an Administrator on TuDiabetes. i knew that if i got involved in helping others, i was helping myself.
William says to (18:49):
2. Have some decent goals (like an A1C goal) so you know when you are finally being successful and can give yourself a pat on the back (talk to your doc about this)....
William says to (18:49):
Yay, Land!
gina says to (18:50):
That is the reason for this whole site!
gina says to (18:50):
i want to help
gina says to (18:50):
get you guys information
John4159 says to Mandy1469 (18:50):
why I helped start a support group and am active online
allysmomma says to (18:50):
hi everyone. I am a parent of a diabetic child she is 13 yrs old
William says to (18:50):
3. Talk to your doc about how to arrange a safe diabetes vacations (it might be just a few minutes every once in a while). Go to www.behavioraldiabetes.org and see the "10 things booklet".....
Ellen says to (18:50):
I think we have to train our doctors to stop judging and start being a team member
William says to (18:51):
The booklet is free to download, the last item is about diabetes vacations....
Brensdad says to (18:51):
Amen to that Ellen
Alex McTaggart says to (18:51):
good luck ellen
gina says to (18:51):
DR. P
Alex McTaggart says to gina (18:51):
lol'
Brensdad says to (18:51):
Amen to that Ellen
gina says to (18:51):
i have some questions from people in Private messages for you to answer
kemakinson says to (18:51):
docs should be coaches who put us up to bat but coach us along the way...
William says to (18:51):
And yes, Ellen. You need to have a doc who you trust and like, and who will collaborate with you in a respectful manner!
William says to (18:51):
Yes, ke. I agree!
NoVaType1 says to (18:52):
I agree with Ellen. Doctors need to balance clinical data and personal experience.
gina says to (18:52):
bdva asked: how does one find or know a good counselor to talk about
burnout/depression
allysmomma says to (18:52):
my childs doctor is very good she respects what i have to say
Jeff says to gina (18:52):
If THEY are not diabetic... will it even occur to them, to think about the weight caused by insulin? The lows caused by too much?
William says to (18:53):
Again Gina, that's hard. Few psychs will know about diabetes, so if you have to find one who is willing to learn and be open.
Brensdad says to (18:53):
We called our insurance company for a recommendation on a good therapist.
NoVaType1 says to (18:53):
My wife once had a doc who put herself on a pump for a week (filled with saline) and tested her sugars four times a day (her brother was a diabetic). It made a powerful impact.
William says to (18:53):
Jeff, yes. If they are good at listening!
kemakinson says to (18:53):
I've come to the realization that even though they aren't diabetic, they've dedicated their lives to helping us...and that says a lot right there
bdva50 says to gina (18:53):
ty Dr........ty Gina
gina says to William (18:53):
alex asked what happens if you are alone and no one is around to help you?
Mandy1469 says to (18:54):
Good question!
AllisonBlass says (18:54):
Like living alone?
SteveRRR says to (18:54):
do the best you can
John4159 says to NoVaType1 (18:54):
My pharmacist wore a saline pump for a month
Alex McTaggart says to (18:54):
yes
William says to (18:54):
Gina, that is so sad. That's when you need to come here, and to support groups,
and to reach out to make new friends. It is tough, but like Land said, you will also be benefiting others.
allysmomma says to (18:55):
i have a support group but its not too active
gina says to William (18:55):
Jeff asked this: DOing everything we know HOW to do, doing everything we can... if
the disease laughs at our efforts, and some eye/kidney/circulation
problem says "hi"... does this mean WE are burnt out or just jaded
Alex McTaggart says to (18:55):
well I support myself and I am still around
AllisonBlass says (18:55):
I agree, I spend a lot of time going to diabetes conferences or events in my area, or
online. When I come home it's a little easier.
Brensdad says to (18:55):
How about a neighbor? I've asked mine to come over before when I was having a bad low to help keep an eye on the kids.
Mandy1469 says to (18:56):
I don't know ANY other diabetics around me. I'll be going to an EXPO this weekend
Brensdad says to (18:56):
It scares me to death that my daughter would have a low while I was having a low...and I couldn't help her or myself.
SteveRRR says to (18:56):
wow
landileigh says to (18:56):
expos are AWESOME!
allysmomma says to (18:56):
yeah we like the expo too
AllisonBlass says (18:56):
Mandy, you'd be very, very surprised how many there are! PM me directly or email me at amblass@gmail.com for some tips on meeting other diabetics.
William says to (18:56):
Thanks, Gina. Great metabolic control is like wearing a seat belt. It won't guarantee that accidents wont happen, but it makes it a whole lot less likely. It is very discouraging when complications happen even though you are working hard.
Jeff says to (18:57):
Is THAT burnout?
William says to (18:57):
Speaking of EXPO's, do check out the Taking Control of Your Diabetes conference, if one comes to your town. It is awesome. See www.tcoyd.org
gina says to (18:58):
ellen asked: At clinical diabetes conferences, how many endocrinologists
would be willing to listen to the psychological aspects of living
with diabetes 24/7, the burnout, how to address it etc.?
William says to (18:59):
Gina, I lecture to these folks all the time. They are OFTEN willing to listen, but they are also discouraged. They just don't feel like they have enough time to address these tough, emotional issues.
Brensdad says to (18:59):
Maybe they should not schedule one patient every three minutes...
Jeff says to gina (18:59):
They also have a horrible habit of using terms like non-compliance!
Tiger Lily says to (18:59):
i get a LOT more than 3 min with my endo!
William says to (19:00):
Docs are under terrible pressure, they don't do that crazy scheduling because they enjoy it!
kemakinson says to (19:00):
hmmm...I think that if they don't the time spent on everything else doesn't mean a whole lot (just my opinion)
AllisonBlass says (19:00):
I do too. I usually get about half an hour.
allysmomma says to (19:00):
yeah we dont feel rushed at endos either
Tiger Lily says to (19:00):
and my endo calls me his 'star patient' even when my A1c sucks
gina says to Jeff (19:00):
tiger lol so does mine
William says to (19:00):
Yay, Tiger, I like your endo!
gina says to (19:00):
lmao
AllisonBlass says (19:00):
Read Cheating Destiny, it explains a lot about what it's like for an endocrinologist.
Mandy1469 says to (19:00):
I get at max 15 minutes
Tiger Lily says to (19:00):
i LOVE my endo! he rocks! 5/5
Brensdad says to (19:01):
My daughter's appointments at the Barbara Davis Center take forever because
they spend so much time with her. My endo is in and out in less than 5.
lou says to (19:01):
most endo wont see you with out ins
AllisonBlass says (19:01):
The author told the story of an endo who saw every patient for the "ideal" time, and he ended up going broke because of it.
gina says to Jeff (19:01):
my endo tells me "i know diabetes is a pain in the ass"
lou says to (19:01):
so they can bill ins for thing you dont get
Mandy1469 says to (19:01):
That's a great book Allison!
gina says to Jeff (19:01):
jeff hirsch the author did a chat here
kemakinson says to (19:02):
Mind-Body Diabetes Revolution is great as well
AllisonBlass says (19:02):
Another great book is Dr. Polonsky's book! And you can find out more about it
here: http://www.amazon.com/Diabetes-Burnout-What-When-Anymore/dp/1580400...
Brensdad says to (19:02):
A walk-in clinic charges $95 on average and the doc is there for like 2 minutes. Endos bill at least $200. And they can bill based on the complexity of the visit.
gina says to William (19:02):
I have DR. Polonsky's book as well
Brensdad says to (19:02):
OK, I'm done griping.
landileigh says to gina (19:02):
Dr. Polonsky's book is amazing!
gina says to (19:03):
If anyone wants to borrow it let me know i will send it to you
John4159 says to NoVaType1 (19:03):
Are any of us immune to burnout?
AllisonBlass says (19:03):
Nick, read Cheating Destiny regardless... it will change your life. I'm serious!!
lou says to (19:03):
i just got pumping ins today
AllisonBlass says (19:03):
John, only if you're a Vulcan.
Brensdad says to (19:03):
Will do.
gobbly2100 says to (19:03):
I recently started pumping :)
landileigh says to (19:03):
live long and prosper Allison
John4159 says to AllisonBlass (19:03):
Live long ...
AllisonBlass says (19:03):
See, they had the right attitude... ;-)
Brensdad says to (19:03):
Allison, send that book title to my diabetesfriends profile if you don't mind so
NoVaType1 says to (19:03):
Nope. I think that it's all part of the disease, John
Jeff says to (19:03):
This disease teaches ME to be a VULCAN (Star Trek Reference)
landileigh says to John4159 (19:03):
GET OUT OF MY HEAD JOHN!
Brensdad says to (19:03):
I'll remember
landileigh says to John4159 (19:03):
lol!
William says to (19:04):
I wish I could have called my book, Diabetes Sucks. But the publisher didn't like that title. So---Diabetes Burnout...
SteveRRR says to (19:04):
ha
AllisonBlass says (19:04):
Hahaha.
gina says to (19:04):
Dr. P oh my god that would be the best!
Jeff says to (19:04):
Can't get wound up over stupid numbers.... 23, 547... numbers to be dealt with and move on
landileigh says to John4159 (19:04):
lol! might sell more books with that title though!
Ikonic says to (19:04):
LOL @ calling it Diabetes Sucks
Ikonic says to (19:04):
Amen!!
gina says to (19:04):
you would get a lot of readership
John4159 says to AllisonBlass (19:04):
a sequel ?
Mandy1469 says to (19:04):
Absolutely!
lou says to (19:04):
how long gobbly
landileigh says to John4159 (19:05):
i won't live my life as a number. i'm more than my A1c!
SteveRRR says to (19:05):
diabetes sucks more?
gina says to (19:05):
land great attitude
Jeff says to (19:05):
I'd wish it on my enemies GLADLY!
gina says to (19:05):
Diabetes sucks, and so does the diabetes police!
AllisonBlass says (19:05):
I remember seeing a series of ads about body image where the girls, of all sizes, were saying, "I am more than a number."
AllisonBlass says (19:05):
I thought that was also very appropriate for diabetes.
Brensdad says to (19:05):
I feel like I neglect my T1 D in order to care for my T1 daughter.
William says to (19:05):
Guys and Gals, I need to sign off here shortly. You are a terrific group!
SteveRRR says to (19:05):
nYC med pol
Ikonic says to (19:05):
Allison, absolutely
NoVaType1 says to John4159 (19:05):
Honestly a Diabetes Sucks Bible would honestly be a welcome addition to our home's diabetes library
SteveRRR says to (19:05):
ty Doc, have your book here
kemakinson says to (19:06):
looking forward to meeting you in a few weeks...
landileigh says to John4159 (19:06):
you have been awesome Dr.P!
Ikonic says to (19:06):
NoVa type 1... northern va?
AllisonBlass says (19:06):
thanks everyone! and thanks again Dr. Polonsky!
Ikonic says to (19:06):
I grew up in that area
Jeff says to (19:06):
DOCTOR, if we email your clicnic, do you have folks you recommend LOCALLY to some of us???
NoVaType1 says to Ikonic (19:06):
Yes, Northern VA
Ikonic says to (19:06):
where at?
Mandy1469 says to (19:06):
THANKS!
gina says to (19:06):
Dr. P thanks so much for the chat
William says to (19:06):
Final thought-- put a little sticky note under the window of your meter, and write "Remember ,it is just a number" (not a statement of your self-worth)..
Ikonic says to (19:06):
I am originally from manassas
NoVaType1 says to Ikonic (19:06):
Ashburn
gina says to (19:06):
ha, i wish i could just say that. its just a number
John4159 says to (19:06):
logic
gina says to (19:06):
its hard
John4159 says to (19:06):
logical
gina says to (19:07):
the numbers drive me insane
William says to (19:07):
I may know some people in your area, maybe. contact info@behavioraldiabetes.org. I'll try.
Florian says to (19:07):
Hey everybody stop a minute and give yourself a pat on the back for being able to control your blood sugars as well as you do with the primitive insulin and delivery devices that we have available today.
Ikonic says to NoVaType1 (19:07):
awesome
AllisonBlass says (19:07):
It is hard, but it's true. It's just a guidepost.
William says to (19:07):
Yay, florian!
gina says to (19:07):
Florian thanks!
William says to (19:07):
So long, all!
John4159 says to (19:07):
pffft, I'm a whopping 12.5 tonight :(
Jeff says to (19:07):
A GENERAL indication, NOT an accurate number either!!!!!
AllisonBlass says (19:07):
Florian, this is what I do on my anniversary.
gina says to (19:07):
bye thanks so much for the chat
John4159 says to (19:07):
ty doc
Ikonic says to (19:07):
Take care, doc - I was late to this chat :(
SteveRRR says to (19:07):
and my cgms is buzzing....
AllisonBlass says (19:07):
My parents always gave me presents and cards on my anniversary as a way to say "You're doing a good job, way to go."
gina says to (19:08):
if you all want to stick around, you can
Ikonic says to (19:08):
oh wow
gina says to (19:08):
im staying
Ikonic says to (19:08):
my parents never even celebrated my D anniversary
Ikonic says to (19:08):
it was a sad day for me for awhile
AllisonBlass says (19:08):
I still celebrate. I went out to a great fancy dinner with friends this year in New York
City. It was great. A great way to start off a new year.
John4159 says to (19:08):
i celebrate mine now
Ikonic says to (19:08):
I celebrate mine now too
Ikonic says to (19:08):
it was a life changing event ...obviously
John4159 says to (19:08):
Kitters and mine are almost the same'
gina says to (19:08):
i dont celebrate mine
AllisonBlass says (19:08):
I kick ass. Why not celebrate?
NoVaType1 says to Ikonic (19:08):
My family never did D anniversaries but they never really changed how they dealt
with me.
Ikonic says to (19:09):
hell yeah
Brensdad says to (19:09):
I don't even remember my dx date
gina says to (19:09):
ol
gina says to (19:09):
i remember mine
gina says to (19:09):
nov. 25, 2000
SteveRRR says to (19:09):
same hee Bd
AllisonBlass says (19:09):
Mine is January 27, 1994.
Ikonic says to (19:09):
I do... 10 days after my 16th birthday
Ikonic says to (19:09):
August 28, 2002
John4159 says to (19:09):
October 19, 1975
Brensdad says to (19:09):
We spent our wedding anniversary in the hospital when Emma was diagnosed
chelsea says to (19:09):
grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
William says to (18:03):
Hello. This is Dr. Polonsky. Took me a bit of time to figure out how to log in.
AllisonBlass says (18:04):
Hey Dr. Polonsky!
Lloyd says to (18:04):
Welcome
kitter says to (18:04):
Hi Dr Polonsky
MeadowLark says to (18:04):
Hi Dr!
John4159 says to (18:04):
ya gotta wonder. It's a stressful job. They prolly need their own burnout book.
Stump86 says to (18:04):
welcome Dr. Polonsky
Jeff says to (18:04):
Doctor Hello
AllisonBlass says (18:04):
I guess we'll get started now.
patti says to (18:04):
hi dr
Tiger Lily says to (18:04):
howdy Dr Polonsky
Jeffrey says to (18:04):
hey doc
William says to (18:04):
Hi All!
kitter says to (18:04):
crud, have we got time to get coffee before we start?
Tiger Lily says to (18:04):
lol
kitter says to (18:04):
anybody want one?
Lloyd says to (18:04):
email me one
AllisonBlass says (18:04):
Welcome everyone to the Diabetes Burnout chat with Dr. William Polonsky. Dr. William H. Polonsky, Ph.D., CDE is a licensed clinical psychologist, and the Behavioral Diabetes Institute's Founder and Director.
MeadowLark says to (18:04):
me . only I cant have nay anyway
AllisonBlass says (18:05):
Tonight we're going to be discussing something that most people with diabetes will eventually face... the inevitable burnout with this rigorous disease. Thanks for joining us!
MeadowLark says to (18:06):
how do we deal with burnout? I get depressed and recognize emotional eating:9 it stink.s.. and i'm addicted to bread and grains :(
AllisonBlass says (18:06):
Feel free to chime in with questions at anytime, but please allow time for Dr.
Polonsky to respond.
AllisonBlass says (18:06):
We don't want to overwhelm him.
William says to (18:06):
And be patient with me. I'm a one-fingered typist!
NoVaType1 says to (18:07):
Thanks for chatting with us Dr. Polonsky
kitter says to (18:07):
people type with more than one finger?!
chelsea says to (18:07):
that is kool so am i
Jeff says to (18:07):
Try it with some of our callouses...
patti says to (18:07):
my question for tonight is it good to take insulin, and metformin along with glipizide, lipitor, nexium and synthroid cause i started almost three weeks ago
William says to (18:07):
I'd love to hear your thoughts about burnout. What seems central is when you feel out of control. You feel like you are putting in effort to your diabetes, and not getting great results. Make sense?
AllisonBlass says (18:07):
Patti, this chat is for diabetes burnout, not for medical questions.
Tiger Lily says to (18:07):
i take all of that except glipizide and nexium
AllisonBlass says (18:08):
Please ask your doctor about those issues or wait until the end of the chat.
AllisonBlass says (18:08):
Everyone, please stay on topic. Wait until the end of the chat for other issues. Thanks!
kemakinson says to (18:08):
Yes, it sounds very familiar, although I've made major progress in the past few months!
William says to (18:08):
so MeadowLark, how can you tell if you are doing well enough with your diabetes? or anybody else chime in!
MeadowLark says to (18:09):
putting wrong foods in my mouth is as bad as an addict:( depression with bad numbers... Hardtime regaining control.
Jeff says to (18:09):
Dr. been a diabetic since was 3.... nearly 4 decades now (almost)
John4159 says to (18:09):
I always found when my sugars were the whackiest, when I felt the most out of control, is when I felt the most burnt out
AllisonBlass says (18:09):
I always feel the most burned out when I'm taking care of my diabetes on my own... when I was working with Gary Scheiner or when I was growing up it didn't seem as bad.
SteveRRR says to (18:09):
That is long time, Doc.
NoVaType1 says to (18:09):
So my question is relatively simple. Do you think that diabetics are more prone to burnout due to life stresses plus diabetes as they're unable to balance out a good life balance or are they more burned by their disease?
MeadowLark says to (18:09):
When my numbers are good.. I’m energetic and can happily play with my kids.
Lloyd says to (18:09):
I can speak to the other end. I am t2 14 years, and have never been further from burnout. In my case, that is because of the huge level of success I have had. I think it proves your point in another way.
patti says to (18:09):
well because i'm tired of all these meds thats a burnout
kemakinson says to (18:09):
If I'm reaching the goals that I have set and have shared with my endocrinologist - reasonable manageable goals
Jonah says to (18:10):
I had great numbers and felt crappy last year, I have ehh numbers and feel pretty good this year
Stump86 says to (18:10):
I have a question as well: What would you say are "symptoms" of burn out, if there are any, and how do you suggest someone would avoid them and stay on track?
chelsea says to (18:11):
i do not like test in 15 mints after a low and my dad tells me to but i just do not learn most of the times
Jonah says to (18:11):
I don't test 15 minutes after a low because it's never up by then- I wait 25-30 minutes.
William says to (18:11):
OK. So one thing we know-- you can overcome burnout in all sorts of ways. Jonah may be a bit unusual, because the first step (Stump) is do you have clear goals so that you can actually tell when you're being successful. Numerical goals!
Jeff says to (18:11):
How do I tell when DIABETES is the issue, and when its something that ANYONE can help me with???
SteveRRR says to (18:12):
It never stops. I been living with it for 42 years. As hard as I've tried, there were always those no-fun lows, and eventual retinopathy and kidney transplant. Some days I just come home from work and say" just go to bed, I don't feel like playing"
John4159 says to chelsea (18:12):
good question Jeff, the D is always there bothering us
patti says to (18:12):
good question jeff
MeadowLark says to (18:12):
My number goal is to stay between 70 and 120. I just cant seem to get there and stay. depressed and then mess happens.
AllisonBlass says (18:13):
MeadowLark: Maybe you should be more flexible with your goal and work your way up... say "For 6 months, I want 50% of my blood sugars to be 70-120 target" and then re-evaluate.
SteveRRR says to (18:13):
As best as I try, I am not as smart as a working pancreas. Working pancreas doesn't have to think about its job; it just does it.
Jonah says to (18:13):
I set goals like wake up below 150 80% of the time and below 300 100% of the time.
William says to (18:13):
There are a lot of great comments going by. Let's stay with the number stuff just for a minute. Meadow, what is your A1C goal? You can drive yourself crazy trying to have perfect blood sugars all the time. And the goal of 70 -120 is too hard!
MeadowLark says to (18:14):
since my diagnoses of diabetes.. feeling deprived. etc. it was bad enough when I was homeless. not getting to eat and now I have food am not allowed to eat.
William says to (18:14):
It is a recipe for feeling like a failure.
Lloyd says to (18:14):
I got my A1c down by reducing it 7 times in a row. Small steps
William says to (18:15):
small steps indeed! I agree.
MeadowLark says to (18:15):
my last A1c was 6.8.. I'm due for one but cant afford to go. co pay cost too much.
Jeff says to (18:15):
Ive met dozens of D folks online, for years. Some of us try to hard at the perfect range
John4159 says to chelsea (18:15):
ease up on the A1C and stress of complications takes over. There's nothing as stressful as an eye full of blood.
Tiger Lily says to (18:15):
thank you John
MeadowLark says to (18:16):
I will lose the ins in the end of May anyway.
SteveRRR says to (18:16):
yuk
landileigh says to (18:16):
and fear of complications makes your stress levels and numbers go up
John4159 says to (18:16):
there's more stress ML
Lloyd says to (18:16):
A1c of 8.7 8.5 7.8 6.9 5.7 5.5 5.3 4.9
MeadowLark says to (18:16):
Thankyou
William says to (18:16):
so meadow if your A1c is in a safe place, and you aren't having any dangerous lows, AND you're not letting diabetes control your life-- then that is a good measure of success!
kitter says to Jeff (18:16):
WOW Lloyd
landileigh says to (18:16):
HEY! it's Lloyd!
Jonah says to (18:17):
I don't feel like there is such a thing as a safe place with diabetes.
Lloyd says to (18:17):
and I was happy when leaving the Dr each time, because it was an improvement
John4159 says to chelsea (18:17):
a1c of 7.3 6.4 6.3 6.4 6.0 I hear ya Lloyd
Jeff says to (18:17):
Doctor, nobody has done the background studies, papers, effects on STRESS on
diabetics T1 or T2. If they had there would be a LOT more folks with your credentials and experience around.... no?
William says to (18:17):
Then there is the issue (brought up here) that you have to be eternally vigilant. That there are no vacations from diabetes. It is a fulltime job, with lousy pay, and no vacations.
kemakinson says to (18:18):
It's Kate from Seattle...I e-mailed you a few days ago
SteveRRR says to (18:18):
pay is we can stay alive
landileigh says to (18:18):
I want to say that I feel with all of the online social networking going on (such as this chat here), your quote of "Feeling connected to others, feeling that someone else grasps what living with diabetes is really like for you, feeling that someone cares"
William says to (18:18):
Jeff, there have been lots of studies about stress and diabetes, but still you're right-- there are few folks like me working in this field.
landileigh says to (18:18):
THAT is what these people here are all ABOUT!
William says to (18:18):
Hi Kate. And see you soon!
Alex McTaggart says to (18:18):
Hi All
kemakinson says to (18:18):
I have a story about stress and diabetes - it's unbelievable what cortisol does to your entire body, let alone your diabetes
Jeff says to (18:18):
Could count them on one hand.... most in Boston at Joslin, no?
John4159 says to landileigh (18:19):
Right on landileigh. We do much better with everyone else cheering for us
William says to (18:19):
Jeff, that's where I used to work. Yes, a fair number at Joslin.
landileigh says to (18:20):
I think the connections on the different boards and blogs makes it so that if i have a bad day, i just know tomorrow will be different
William says to (18:20):
And yes, good social support. That's THE secret. When you have someone rooting for you, it does make all the difference.
Alex McTaggart says to (18:20):
Hey Dr..how does one find a GOOD psychologist if needed..I went through a massive depression about 2 yrs ago due to being in a coma..I am out of it now..but every so often I just don't wanna do anything
Jeff says to (18:20):
Was Diabetic nearly 25 years before someone told me I was allowed to take a "day off" (who had credentials in Psych/Social work) I was stunned at the realization
kitter says to (18:21):
Landileigh, I agree there... I'm on a t1 parents board, and the kids help me see that I don't have it so bad. A few bad days don't mean Its always gonna be bad
John4159 says to (18:21):
I meet so many diabetics who refuse help from others. They want to do it alone. Hide in their own little worlds. How we reach them is a mystery to me. I've tried.
Tiger Lily says to (18:21):
what did he mean 'day off' ????
William says to (18:21):
How to find a good psych? Not easy. Only answer is to ask everyone you know, and then try to visit 2 or 3. Pick the one you feel you can trust. I wish there was a better way.
Tiger Lily says to (18:21):
my insurance pays for 6 visits to a psych
Tiger Lily says to (18:21):
:(
Tiger Lily says to (18:21):
per year
Alex McTaggart says to (18:22):
thats tough to do since most GP's will not want to step on the toes of other DR's and only allow ya one shot here in Canada
Jeff says to (18:22):
he was a She. She suggested, ONCE in a great while... let someone else DO the test FOR me.... let our partners do the shot (if they are willing)
William says to (18:22):
"Day off". I agree that everyone needs and deserves a regular diabetes cavation. BUT it needs to be a safe, time-limited one. I bet some of you have figured out how to do that. Anybody?
kemakinson says to (18:22):
The most impt thing is that they understand diabetes and all of the emotional baggage that comes along with a 24 hour disease!
Tiger Lily says to (18:22):
not me!
SteveRRR says to (18:22):
no day off
Lloyd says to AllisonBlass (18:22):
I eat 150 carbs on my birthday, instead of 75
Jonah says to (18:22):
Yeah, having someone else manage your diabetes is great. My mother did that once. But I don't have anybody willing to help anymore.
Tiger Lily says to (18:23):
lol
Jeff says to (18:23):
Cut back the testing from 7 to the absolute minimum just for one day...
landileigh says to (18:23):
you let someone else count the carbs, and tell you how much insulin, and/or do the shot?
AllisonBlass says (18:23):
Sometimes I test less often, like 2 or 3 times instead of 6 or 7.
John4159 says to (18:23):
I have found that when I know what my body's doing and feel in control, I can take extended time off. I haven't recorded one test in the last 5 months and my A1C is the best ever. I will start working at things again shortly, but knowledge truly is power.
kitter says to (18:23):
I never take a full day off... but I will occasionally take a couple of hours where I just think "eff it", and relax. I don't go overboard, but a couple of hours respite is great... Just to not think about D for a few hours...
Jeff says to (18:23):
never met ya Jonah, but anyone here will glad to do it I'd bet, if you were close my friend!
Lloyd says to (18:23):
It is hard to take time off if you are on insulin
William says to (18:24):
Lloyd gives a good example of a small diabetes vacation. Diabetes is about compromising between doing it perfectly and having a totally spontaneous life. But make it a conscious choice!
Alex McTaggart says to (18:24):
Not testing may work for those of you not on an insulin pump, but for those of us on it we have no choice but to test 5 or more times a day
AllisonBlass says (18:24):
I don't take time off of taking insulin. I bolus for the food and if I feel low or high I test.
AllisonBlass says (18:24):
I am on the insulin pump and it works for me. I don't do it much.
AllisonBlass says (18:24):
But sometimes.
Jeff says to (18:24):
Not that hard
Jeff says to (18:24):
Sure you can... garbage!
kemakinson says to (18:24):
I'm on the CGMS and it's a nice break to be able to rely on something other than
my intuition when it comes to highs and lows, peace of mind at least
SteveRRR says to (18:25):
CGSM here too
AllisonBlass says (18:25):
Alex, you definitely should test 5 times a day no matter whether you're on the pump or not - but I think one day every few months, you can handle it.
John4159 says to (18:25):
A spontaneous life is a general goal of mine. I work hard at my control so I can eat Chinese and drink beer and sleep in till noon
Mandy1469 says to (18:25):
Hey Kitter.
MeadowLark says to (18:25):
how do we deal with the addiction of foods and depression that keeps us eating in a vicious cycle?
Jeff says to (18:25):
Pretend its a sick day ~ use that protocol I would think would do the trick
MeadowLark says to (18:25):
constant hunger....
William says to (18:25):
By the way, if your A1C is not in a safe place, then you may need to think that "vacation"...
MeadowLark says to kiddydoll (18:26):
knowing it is not good to eat.
Jeff says to (18:26):
No more 5 testings, 8, testings, just hummmmmngh... pretend I'm sick, only 2 maybe three... I would think?
John4159 says to (18:26):
small steps. slowly reduce the food and slowly move the feet more
Mandy1469 says to (18:26):
Is it possible to get burned out, when you haven't even been diabetic a full year?
NoVaType1 says to (18:26):
One of the interesting things that I've observed is that the long-term data from type 1s has been that perfect control is best (duh, no kidding) but that data seems to have become my endo's cop-out when dealing with me. Makes me feel like a lab rat.
William says to (18:26):
Meadow, about food addiction. It is like feeling at war with food, isn't it?
SteveRRR says to (18:26):
we are lab rats
John4159 says to Mandy1469 (18:26):
Mandy, the first years can be the toughest
landileigh says to (18:26):
mandy, i know i've been overloaded at times with information and get burned out
William says to (18:26):
Mandy, you are hereby allowed to get burned out as soon as you want!
MeadowLark says to (18:26):
YES!!!! All the time!
Jeff says to (18:26):
Dr. honestly will 1 day make any genuine difference? Provided you/someone is doing them, keep things ~safe~?
kitter says to (18:27):
Mandy, definitely. I think that first year is the hardest, and it can just seem like too much for a while
AllisonBlass says (18:27):
Yeah, I agree. There is not minimum time you need to be diabetic before you can hate it!
AllisonBlass says (18:27):
*no
kitter says to (18:27):
but thats where support boards come into play... they really help
John4159 says to Mandy1469 (18:27):
many teens go off the deep end when dxed
William says to (18:27):
Jedd, will one vacation in your whole life be enough? NO! You need regularly scheduled vacations, like Lloyd's birthday meal...
kemakinson says to (18:27):
pretty sure I hated it day one...but things are on the upswing with my relationship with my diabetes now
SteveRRR says to (18:27):
each of us is also an individual experiment in diabetes management, with so many variables
MeadowLark says to (18:27):
people talk to me in here.. but not on a board.. no answers to my posts.
John4159 says to SteveRRR (18:28):
it's like a fingerprint
AllisonBlass says (18:28):
Oh, I remember something else. Some people have their family or their spouse count carbs and operate the pump for the day, instead of the person with diabetes. That way the diabetic doesn't have to think.
Mandy1469 says to (18:28):
Last time, I thought I was still honeymooning, stopped my insulin for 2 days and ended up in DKA. And I should know better. I'm 29, I should know better!
SteveRRR says to (18:28):
yeah John
AllisonBlass says (18:28):
If I didn't live alone, I would use that.
MeadowLark says to (18:28):
I think .. my depression and fight with this is something they dont want to deal with. only if it is apositeve.
NoVaType1 says to (18:28):
I told her once, I like a variety of food, I don't eat fried foods (13 years now) and she finds new ways to tweak my diet, like no more soy burgers or you eat too much protein. So I limited my protein intake and then she says I need more to eat whole food
SteveRRR says to (18:28):
yuk,, Mandy
John4159 says to AllisonBlass (18:29):
I bet living alone is stressful
William says to (18:29):
Meadow, I think the "vacation" idea may be one solution to food addiction. Pick one food you are at war with, and let yourself have that and enjoy it every once in a while (eat with awareness and enjoy).....
John4159 says to (18:29):
d-wise ;)
Jeff says to (18:29):
Depression is NOT the issue, we have EXCELLENT reason to get burned out! The PERMINANT ashes becomes the problem
Alex McTaggart says to (18:29):
Doc..question for ya...are you a diabetic yourself?
kemakinson says to (18:29):
fiber rocks for keeping you full in between meals...
SteveRRR says to (18:29):
living alone with D is ok
NoVaType1 says to (18:29):
My sugars go through the roof when I get to my endo... my wife (a type 1 too) calls her "Dr. Evil."
kitter says to (18:29):
lol Nova
William says to (18:29):
Meadow, but don't forget to stay safe by adjusting your meds as needed. And you
may benefit by talking to your doc about this...
Mandy1469 says to (18:29):
Blood sugars AND blood pressure!
AllisonBlass says (18:30):
John, yes, sometimes. Mostly it's just annoying. Like this week I was sick and my blood sugars were all over the place, and all I wanted was for my mom to do everything for me... but I had to. :-(
John4159 says to (18:30):
you could try one of these ultra low carb diets
William says to (18:30):
Dr Evil. Love it!
Lloyd says to AllisonBlass (18:30):
"White coat syndrome" :)
Jeff says to (18:30):
That makes the PUMP/test machine MINI-ME???
AllisonBlass says (18:30):
White coat syndrome?
SteveRRR says to (18:30):
that's right, Jeff
William says to (18:31):
Mandy, YES! And blood pressure (and cholesterol, too).
John4159 says to (18:31):
Whitecoats play with rats ;)
Lloyd says to AllisonBlass (18:31):
You get nervous at the Dr, and your bp goes through the roof
NoVaType1 says to (18:31):
My doc is so well loved, that the pharmacy even hates calling her. I just started with a new general practitioner and he nicely said, "I don't refer people to that doctor anymore."
Jeff says to (18:31):
Jeff scampering around his computer desk in protest
Alex McTaggart says to William (18:32):
Dr..you haven't answered my question..are you a diabetic?
landileigh says to (18:32):
I am in Stage 3 CKD, which i had for 2 years before Dxd with Surgically Induced
Diabetes. What can i do to alleviate fear?
NoVaType1 says to (18:32):
Question: Do you see a lot of stress for diabetics who choose to not inform their co-workers of their condition?
Jonah says to (18:32):
How do you talk to people in such a way that they will be supportive rather than critical of your efforts to keep yourself healthy?
William says to (18:32):
Alex, no I'm not. But don't kick me out of here!
Lloyd says to (18:32):
lol
William says to (18:33):
I wish I could respond to everyone!
Alex McTaggart says to William (18:33):
lol no intention too..just wanted to know if you knew what it was like to go through what we do go through on a daily/min by min basis..other than the psych stuff
gina says to (18:33):
EVERYONE GIVE DR. P A CHANCE TO ANSWER YOUR QUESTIONS
Jeff says to (18:33):
Sorry.
gina says to (18:34):
some ppl type fast than others! ;)
William says to (18:34):
Jonah, about how to talk to others, check out www.diabetesmine.com, and search for "etiquette".
gina says to (18:34):
faster
landileigh says to (18:34):
lol, we kinda hit him pretty quick with a series of questions
John4159 says to (18:34):
we're all burnt out :o~(
Tiger Lily says to (18:34):
every time someone types in the room, the screen scrolls down to the current line, so the Dr can't even read back............ slow down!
gina says to (18:34):
dont burnout the doc lol
William says to (18:34):
Why? Because we have a new wallet sized card-- diabetes etiquette for people who don't have diabetes-- and Amy at diabetesmine talks about it.
Jeff says to (18:34):
negative, DEAD but NOT intimidated!!!!
kemakinson says to (18:35):
so let's let Dr. P choose a topic and we'll focus on that...?
landileigh says to (18:35):
i can't wait to see the diabetes etiquette card! it's so cool!
William says to (18:35):
We don't have the cards to distribute widely yet, but hope to within the next few
months...
Jeff says to (18:35):
Fair...
gina says to (18:35):
cards are perfect
Jonah says to (18:35):
So I hand that to people to tell them how to talk to me?
landileigh says to (18:35):
can we talk about fear?
William says to (18:35):
Bless you, ke!
gina says to (18:35):
i could use them to hand out to everyone i know
landileigh says to (18:35):
i've been reading your book about it
William says to (18:36):
Jonah, yes. You might politely say-- "excuse me, but perhaps you don't know the rules about how to behave. You might want to read this.
John4159 says to landileigh (18:36):
What are your fears landleigh?
William says to (18:36):
By the way, rule #1-- don't offer unsolicited advice (about how I should eat, or anything)
landileigh says to (18:36):
Question: I am in Stage 3 CKD, 2 points from Stage 4, which i had for 2 years before Dxd with Surgically
Induced Diabetes. What can i do to alleviate fear?
Alex McTaggart says to (18:37):
hand out cards....how can you do this since every person has a different objective let alone a different approach to lifes situations..no card can handle that..it would have to be the size of the CN Tower
William says to (18:37):
Land, fear about what exactly?
landileigh says to (18:37):
fear of complete dialysis, fear of failure (kidneys)
Jonah says to Alex McTaggart (18:38):
You can edit the card for your own needs- I've done that for how to deal with me for emergency situations.
landileigh says to (18:38):
i'm doing everything i can. my A1c is 6.1
William says to (18:38):
Alex, it is meant to be somewhat funny. It is merely a way to open up a conversation. Odds are that the other person cares and wants to help, but doesn't know how (I know, not always).
AllisonBlass says (18:38):
Alex, they are general cards but you can probably find something that works for you.
SteveRRR says to (18:38):
kidney failed, & I'm still going strong
gina says to (18:38):
thats great Landileigh
Alex McTaggart says to (18:38):
k
landileigh says to (18:38):
steve, did you go through transplant?
SteveRRR says to (18:39):
yes N 05
SteveRRR says to (18:39):
nov
landileigh says to (18:39):
this is going quick, and i can't seem to stop the progression
William says to (18:39):
Gosh Land, but I'd be scared too. I think talking to folks like SteveRR and others is the way to go.
landileigh says to (18:39):
did you do a double k&p?
SteveRRR says to (18:39):
no\
SteveRRR says to (18:39):
i was offered both
SteveRRR says to (18:39):
but stopped with the kidney
Alex McTaggart says to (18:39):
as for the wallet card..do any of you have cell phone with an opening msg..and do any of you have an ICE contact (In Case of Emergency) for emergency personnel listed in your contacts??
SteveRRR says to (18:39):
kidney from sis
SteveRRR says to (18:40):
very close match
Tiger Lily says to (18:40):
yes, i use HOME and HUSBAND for the names on the phone list
landileigh says to (18:40):
even if there is a cure for diabetes, it won't work for me as the destruction of by B-cells was due to the acute pancreatitis
Tiger Lily says to (18:40):
and MY CELL
landileigh says to (18:40):
my daughter is a perfect match
landileigh says to (18:40):
so i wouldn't get a P either
kemakinson says to (18:40):
I keep my logbook in my purse with contact info and a bracelet on my wrist saying
I'm a T1 and on an insulin pump
Alex McTaggart says to (18:40):
good one Tiger
NoVaType1 says to (18:40):
Dr. Polonsky, do you find that couples who are both diabetic fair better than one spouse diabetic relationships.
Jeff says to kiddydoll (18:40):
DR.... is doing everything you can, everything you are emotionally able TO DO, and STILL "loosing" in spite of those efforts.... is THAT "burnout"?
MeadowLark says to (18:40):
just tested.. am 217:(
William says to (18:41):
Nova, that's so rare that it is hard to say. But it sure makes sense (and I have seen a few).
Alex McTaggart says to kemakinson (18:41):
good one
Mandy1469 says to (18:41):
When you get a chance, Doc.,I have a question about fear. I am truly afraid of insulin. The weight gain and I'm so sensitive a little can send me so low, I'll stay high to avoid it. How can I get over that?
MeadowLark says to (18:41):
my doc will never know cuz It will go down before I'm "supposed " to test.
William says to (18:41):
So Many, sounds like you are fearful about lows! Do I have that right?
gina says to (18:42):
Dr. p i am afraid of low blood too
Jeff says to kiddydoll (18:42):
Forgive me who ISN'T?
Mandy1469 says to (18:42):
Lows and the weight gain of the corrections!
bdva50 says to (18:42):
is also scared of them
William says to (18:42):
Fear of hypo's is about losing confidence in your body; you can't trust what it will do next.
gina says to Alex McTaggart (18:42):
mandy, me too
Tiger Lily says to (18:42):
the corrections are small....... the problem comes with premix insulin where you have to eat MEALS to suit the insulin
AllisonBlass says (18:42):
Jeff, some people are so terrified they will actually skip insulin rather than risk it... Most of us are worried about it but we know we need to take it anyway.
kemakinson says to (18:42):
come on, who doesn't love glucose tabs?
landileigh says to (18:42):
exactly! i get the shakes and look like julia roberts in steel magnolias
gina says to (18:42):
lol
bdva50 says to (18:43):
lol
SteveRRR says to (18:43):
no fun
kitter says to (18:43):
eww glucose tabs
Tiger Lily says to (18:43):
ya!
John4159 says to Mandy1469 (18:43):
Mandy, better control is about the only thing that will work. Do you or can you pump?
Tiger Lily says to (18:43):
lol
landileigh says to SteveRRR (18:43):
i'd rather suck on cake gel than eat the tabs
gina says to (18:43):
the weight gain is what makes me go into burnout
kemakinson says to (18:43):
I just ran 3 miles and hit up a granola bar and stayed between 80-105 the whole time
barbara m says to (18:43):
lows can cause serious ramifications, like car accidents
Mandy1469 says to (18:43):
Yeah, that chalky taste really hits the spot!
William says to (18:43):
For lows, certainly CGMS is one great answer, especially when insurance starts covering them regularly.
NoVaType1 says to (18:43):
I do fear lows. My control was pretty close to perfect and then woke up one morning in an ambulance. The new endo, one of two in the area, changed my insulins because she found my regimen "odd." Sure, but it worked perfectly for 12 years.
kemakinson says to (18:43):
grape tabs is where it is at...they work super fast. I fought them for years but now love them
AllisonBlass says (18:43):
I still use juice boxes... I'm five-year-old trapped in the body of a 22 year old.
MeadowLark says to (18:43):
it sounds like almost everyone here is type1.
bdva50 says to (18:44):
strong exercise will drop me from 250s to 70 real quick
William says to (18:44):
Another solution for fear of lows-- check out
href="http://www.bgathome.com">www.bgathome.com. Blood glucose awareness training can help.
landileigh says to (18:44):
i'm not meadowlark
SteveRRR says to (18:44):
CGMS & glucose tabs are what I use and they've helped no end with lows
landileigh says to (18:44):
i'm an "other"
John4159 says to Mandy1469 (18:44):
is bga back up?
Mandy1469 says to (18:44):
I'm so new, my doc is not in favor of a pump for me yet. But I use an insulin pen,
and it's hard to dose when a whole unit can mean the difference in a hypo.
kitter says to (18:44):
lol Allison. I love juice boxes, but my brother likes to take them, not tell me, and not replace them, then yell when i hypo.. jerk
SteveRRR says to (18:44):
Sorry ML
landileigh says to (18:44):
mandy, see if you can get a NovoJunior pen
Tiger Lily says to (18:44):
Mandy........ get a 1/2 unit pen
SteveRRR says to (18:44):
But you are still diabetic
Tiger Lily says to (18:44):
snap
MeadowLark says to (18:45):
I'm sick of diabetes... and wish this crap was over.. I guess that is why 'jm out of control. definitely burntout.
Tiger Lily says to (18:45):
Humalog makes a 1/2 unit pen too
Mandy1469 says to (18:45):
They make 1/2 unit pens?
landileigh says to MeadowLark (18:45):
it's never over meadow
Tiger Lily says to (18:45):
yes
Tiger Lily says to (18:45):
very handy for those of us on low doses
Tiger Lily says to (18:45):
and YES 1/2 a unit CAN make that much of a difference
gina says to William (18:45):
CAN WE GIVE DR. P A CHANCE TO CATCH UP
landileigh says to Mandy1469 (18:46):
mandy, your doctor can get ya one
bdva50 says to (18:46):
sure
gina says to William (18:46):
ITS MOVING A LITTLE FAST
Jeff says to (18:46):
:)
William says to (18:46):
You guys are great, and enthusiastic!
John4159 says to Mandy1469 (18:46):
I was in a similar boat Mandy. I've been 911'd 9 times. Now that I'm pumping and know pretty much exactly where my BGs are and where they are headed, I'm hoping that's all behind me.
gina says to William (18:46):
Dr. p you have the floor
Alex McTaggart says to (18:46):
Why don't we do what someone said before..let the Doc choose the topic for us to discuss rather than hammer him with everything
Jeff says to (18:46):
Fight or give up makes one giggle....
William says to (18:47):
I'm not sure what to respond to next.
Alex McTaggart says to (18:47):
Why don't we do what someone said before..let the Doc choose the topic
for us to discuss rather than hammer him with everything
bdva50 says to (18:47):
agrees
gina says to (18:47):
great idea
Jeff says to (18:47):
(6)
kemakinson says to (18:47):
OK...he has the floor - pause yourselves!
William says to (18:47):
Like you all need a lecture!!! I don't think so. Hmm....
Jeff says to (18:47):
Wrong gif, sorry
NoVaType1 says to (18:47):
Might it easier to start each question with a "?" to make it easier to answer?
bdva50 says to (18:47):
will hush
kiddydoll says to (18:48):
woooo overwhelming
William says to (18:48):
Burnout is all about feeling out of control. Here are some solutions, though not for
everyone.....
kitter says to (18:48):
gotta run, people... Thanks Dr Polonsky
gina says to (18:48):
how bout you guys give me the question in PM and i will ask
gina says to (18:48):
i will filter it
bdva50 says to (18:48):
that works too Gina
Alex McTaggart says to (18:48):
k
gina says to (18:48):
start PMing me
William says to (18:48):
1. Don't do diabetes alone. You need folks who are rooting for you (and that's why
you are here).
landileigh says to (18:49):
it's why i became an Administrator on TuDiabetes. i knew that if i got involved in helping others, i was helping myself.
William says to (18:49):
2. Have some decent goals (like an A1C goal) so you know when you are finally being successful and can give yourself a pat on the back (talk to your doc about this)....
William says to (18:49):
Yay, Land!
gina says to (18:50):
That is the reason for this whole site!
gina says to (18:50):
i want to help
gina says to (18:50):
get you guys information
John4159 says to Mandy1469 (18:50):
why I helped start a support group and am active online
allysmomma says to (18:50):
hi everyone. I am a parent of a diabetic child she is 13 yrs old
William says to (18:50):
3. Talk to your doc about how to arrange a safe diabetes vacations (it might be just a few minutes every once in a while). Go to www.behavioraldiabetes.org and see the "10 things booklet".....
Ellen says to (18:50):
I think we have to train our doctors to stop judging and start being a team member
William says to (18:51):
The booklet is free to download, the last item is about diabetes vacations....
Brensdad says to (18:51):
Amen to that Ellen
Alex McTaggart says to (18:51):
good luck ellen
gina says to (18:51):
DR. P
Alex McTaggart says to gina (18:51):
lol'
Brensdad says to (18:51):
Amen to that Ellen
gina says to (18:51):
i have some questions from people in Private messages for you to answer
kemakinson says to (18:51):
docs should be coaches who put us up to bat but coach us along the way...
William says to (18:51):
And yes, Ellen. You need to have a doc who you trust and like, and who will collaborate with you in a respectful manner!
William says to (18:51):
Yes, ke. I agree!
NoVaType1 says to (18:52):
I agree with Ellen. Doctors need to balance clinical data and personal experience.
gina says to (18:52):
bdva asked: how does one find or know a good counselor to talk about
burnout/depression
allysmomma says to (18:52):
my childs doctor is very good she respects what i have to say
Jeff says to gina (18:52):
If THEY are not diabetic... will it even occur to them, to think about the weight caused by insulin? The lows caused by too much?
William says to (18:53):
Again Gina, that's hard. Few psychs will know about diabetes, so if you have to find one who is willing to learn and be open.
Brensdad says to (18:53):
We called our insurance company for a recommendation on a good therapist.
NoVaType1 says to (18:53):
My wife once had a doc who put herself on a pump for a week (filled with saline) and tested her sugars four times a day (her brother was a diabetic). It made a powerful impact.
William says to (18:53):
Jeff, yes. If they are good at listening!
kemakinson says to (18:53):
I've come to the realization that even though they aren't diabetic, they've dedicated their lives to helping us...and that says a lot right there
bdva50 says to gina (18:53):
ty Dr........ty Gina
gina says to William (18:53):
alex asked what happens if you are alone and no one is around to help you?
Mandy1469 says to (18:54):
Good question!
AllisonBlass says (18:54):
Like living alone?
SteveRRR says to (18:54):
do the best you can
John4159 says to NoVaType1 (18:54):
My pharmacist wore a saline pump for a month
Alex McTaggart says to (18:54):
yes
William says to (18:54):
Gina, that is so sad. That's when you need to come here, and to support groups,
and to reach out to make new friends. It is tough, but like Land said, you will also be benefiting others.
allysmomma says to (18:55):
i have a support group but its not too active
gina says to William (18:55):
Jeff asked this: DOing everything we know HOW to do, doing everything we can... if
the disease laughs at our efforts, and some eye/kidney/circulation
problem says "hi"... does this mean WE are burnt out or just jaded
Alex McTaggart says to (18:55):
well I support myself and I am still around
AllisonBlass says (18:55):
I agree, I spend a lot of time going to diabetes conferences or events in my area, or
online. When I come home it's a little easier.
Brensdad says to (18:55):
How about a neighbor? I've asked mine to come over before when I was having a bad low to help keep an eye on the kids.
Mandy1469 says to (18:56):
I don't know ANY other diabetics around me. I'll be going to an EXPO this weekend
Brensdad says to (18:56):
It scares me to death that my daughter would have a low while I was having a low...and I couldn't help her or myself.
SteveRRR says to (18:56):
wow
landileigh says to (18:56):
expos are AWESOME!
allysmomma says to (18:56):
yeah we like the expo too
AllisonBlass says (18:56):
Mandy, you'd be very, very surprised how many there are! PM me directly or email me at amblass@gmail.com for some tips on meeting other diabetics.
William says to (18:56):
Thanks, Gina. Great metabolic control is like wearing a seat belt. It won't guarantee that accidents wont happen, but it makes it a whole lot less likely. It is very discouraging when complications happen even though you are working hard.
Jeff says to (18:57):
Is THAT burnout?
William says to (18:57):
Speaking of EXPO's, do check out the Taking Control of Your Diabetes conference, if one comes to your town. It is awesome. See www.tcoyd.org
gina says to (18:58):
ellen asked: At clinical diabetes conferences, how many endocrinologists
would be willing to listen to the psychological aspects of living
with diabetes 24/7, the burnout, how to address it etc.?
William says to (18:59):
Gina, I lecture to these folks all the time. They are OFTEN willing to listen, but they are also discouraged. They just don't feel like they have enough time to address these tough, emotional issues.
Brensdad says to (18:59):
Maybe they should not schedule one patient every three minutes...
Jeff says to gina (18:59):
They also have a horrible habit of using terms like non-compliance!
Tiger Lily says to (18:59):
i get a LOT more than 3 min with my endo!
William says to (19:00):
Docs are under terrible pressure, they don't do that crazy scheduling because they enjoy it!
kemakinson says to (19:00):
hmmm...I think that if they don't the time spent on everything else doesn't mean a whole lot (just my opinion)
AllisonBlass says (19:00):
I do too. I usually get about half an hour.
allysmomma says to (19:00):
yeah we dont feel rushed at endos either
Tiger Lily says to (19:00):
and my endo calls me his 'star patient' even when my A1c sucks
gina says to Jeff (19:00):
tiger lol so does mine
William says to (19:00):
Yay, Tiger, I like your endo!
gina says to (19:00):
lmao
AllisonBlass says (19:00):
Read Cheating Destiny, it explains a lot about what it's like for an endocrinologist.
Mandy1469 says to (19:00):
I get at max 15 minutes
Tiger Lily says to (19:00):
i LOVE my endo! he rocks! 5/5
Brensdad says to (19:01):
My daughter's appointments at the Barbara Davis Center take forever because
they spend so much time with her. My endo is in and out in less than 5.
lou says to (19:01):
most endo wont see you with out ins
AllisonBlass says (19:01):
The author told the story of an endo who saw every patient for the "ideal" time, and he ended up going broke because of it.
gina says to Jeff (19:01):
my endo tells me "i know diabetes is a pain in the ass"
lou says to (19:01):
so they can bill ins for thing you dont get
Mandy1469 says to (19:01):
That's a great book Allison!
gina says to Jeff (19:01):
jeff hirsch the author did a chat here
kemakinson says to (19:02):
Mind-Body Diabetes Revolution is great as well
AllisonBlass says (19:02):
Another great book is Dr. Polonsky's book! And you can find out more about it
here: http://www.amazon.com/Diabetes-Burnout-What-When-Anymore/dp/1580400...
Brensdad says to (19:02):
A walk-in clinic charges $95 on average and the doc is there for like 2 minutes. Endos bill at least $200. And they can bill based on the complexity of the visit.
gina says to William (19:02):
I have DR. Polonsky's book as well
Brensdad says to (19:02):
OK, I'm done griping.
landileigh says to gina (19:02):
Dr. Polonsky's book is amazing!
gina says to (19:03):
If anyone wants to borrow it let me know i will send it to you
John4159 says to NoVaType1 (19:03):
Are any of us immune to burnout?
AllisonBlass says (19:03):
Nick, read Cheating Destiny regardless... it will change your life. I'm serious!!
lou says to (19:03):
i just got pumping ins today
AllisonBlass says (19:03):
John, only if you're a Vulcan.
Brensdad says to (19:03):
Will do.
gobbly2100 says to (19:03):
I recently started pumping :)
landileigh says to (19:03):
live long and prosper Allison
John4159 says to AllisonBlass (19:03):
Live long ...
AllisonBlass says (19:03):
See, they had the right attitude... ;-)
Brensdad says to (19:03):
Allison, send that book title to my diabetesfriends profile if you don't mind so
NoVaType1 says to (19:03):
Nope. I think that it's all part of the disease, John
Jeff says to (19:03):
This disease teaches ME to be a VULCAN (Star Trek Reference)
landileigh says to John4159 (19:03):
GET OUT OF MY HEAD JOHN!
Brensdad says to (19:03):
I'll remember
landileigh says to John4159 (19:03):
lol!
William says to (19:04):
I wish I could have called my book, Diabetes Sucks. But the publisher didn't like that title. So---Diabetes Burnout...
SteveRRR says to (19:04):
ha
AllisonBlass says (19:04):
Hahaha.
gina says to (19:04):
Dr. P oh my god that would be the best!
Jeff says to (19:04):
Can't get wound up over stupid numbers.... 23, 547... numbers to be dealt with and move on
landileigh says to John4159 (19:04):
lol! might sell more books with that title though!
Ikonic says to (19:04):
LOL @ calling it Diabetes Sucks
Ikonic says to (19:04):
Amen!!
gina says to (19:04):
you would get a lot of readership
John4159 says to AllisonBlass (19:04):
a sequel ?
Mandy1469 says to (19:04):
Absolutely!
lou says to (19:04):
how long gobbly
landileigh says to John4159 (19:05):
i won't live my life as a number. i'm more than my A1c!
SteveRRR says to (19:05):
diabetes sucks more?
gina says to (19:05):
land great attitude
Jeff says to (19:05):
I'd wish it on my enemies GLADLY!
gina says to (19:05):
Diabetes sucks, and so does the diabetes police!
AllisonBlass says (19:05):
I remember seeing a series of ads about body image where the girls, of all sizes, were saying, "I am more than a number."
AllisonBlass says (19:05):
I thought that was also very appropriate for diabetes.
Brensdad says to (19:05):
I feel like I neglect my T1 D in order to care for my T1 daughter.
William says to (19:05):
Guys and Gals, I need to sign off here shortly. You are a terrific group!
SteveRRR says to (19:05):
nYC med pol
Ikonic says to (19:05):
Allison, absolutely
NoVaType1 says to John4159 (19:05):
Honestly a Diabetes Sucks Bible would honestly be a welcome addition to our home's diabetes library
SteveRRR says to (19:05):
ty Doc, have your book here
kemakinson says to (19:06):
looking forward to meeting you in a few weeks...
landileigh says to John4159 (19:06):
you have been awesome Dr.P!
Ikonic says to (19:06):
NoVa type 1... northern va?
AllisonBlass says (19:06):
thanks everyone! and thanks again Dr. Polonsky!
Ikonic says to (19:06):
I grew up in that area
Jeff says to (19:06):
DOCTOR, if we email your clicnic, do you have folks you recommend LOCALLY to some of us???
NoVaType1 says to Ikonic (19:06):
Yes, Northern VA
Ikonic says to (19:06):
where at?
Mandy1469 says to (19:06):
THANKS!
gina says to (19:06):
Dr. P thanks so much for the chat
William says to (19:06):
Final thought-- put a little sticky note under the window of your meter, and write "Remember ,it is just a number" (not a statement of your self-worth)..
Ikonic says to (19:06):
I am originally from manassas
NoVaType1 says to Ikonic (19:06):
Ashburn
gina says to (19:06):
ha, i wish i could just say that. its just a number
John4159 says to (19:06):
logic
gina says to (19:06):
its hard
John4159 says to (19:06):
logical
gina says to (19:07):
the numbers drive me insane
William says to (19:07):
I may know some people in your area, maybe. contact info@behavioraldiabetes.org. I'll try.
Florian says to (19:07):
Hey everybody stop a minute and give yourself a pat on the back for being able to control your blood sugars as well as you do with the primitive insulin and delivery devices that we have available today.
Ikonic says to NoVaType1 (19:07):
awesome
AllisonBlass says (19:07):
It is hard, but it's true. It's just a guidepost.
William says to (19:07):
Yay, florian!
gina says to (19:07):
Florian thanks!
William says to (19:07):
So long, all!
John4159 says to (19:07):
pffft, I'm a whopping 12.5 tonight :(
Jeff says to (19:07):
A GENERAL indication, NOT an accurate number either!!!!!
AllisonBlass says (19:07):
Florian, this is what I do on my anniversary.
gina says to (19:07):
bye thanks so much for the chat
John4159 says to (19:07):
ty doc
Ikonic says to (19:07):
Take care, doc - I was late to this chat :(
SteveRRR says to (19:07):
and my cgms is buzzing....
AllisonBlass says (19:07):
My parents always gave me presents and cards on my anniversary as a way to say "You're doing a good job, way to go."
gina says to (19:08):
if you all want to stick around, you can
Ikonic says to (19:08):
oh wow
gina says to (19:08):
im staying
Ikonic says to (19:08):
my parents never even celebrated my D anniversary
Ikonic says to (19:08):
it was a sad day for me for awhile
AllisonBlass says (19:08):
I still celebrate. I went out to a great fancy dinner with friends this year in New York
City. It was great. A great way to start off a new year.
John4159 says to (19:08):
i celebrate mine now
Ikonic says to (19:08):
I celebrate mine now too
Ikonic says to (19:08):
it was a life changing event ...obviously
John4159 says to (19:08):
Kitters and mine are almost the same'
gina says to (19:08):
i dont celebrate mine
AllisonBlass says (19:08):
I kick ass. Why not celebrate?
NoVaType1 says to Ikonic (19:08):
My family never did D anniversaries but they never really changed how they dealt
with me.
Ikonic says to (19:09):
hell yeah
Brensdad says to (19:09):
I don't even remember my dx date
gina says to (19:09):
ol
gina says to (19:09):
i remember mine
gina says to (19:09):
nov. 25, 2000
SteveRRR says to (19:09):
same hee Bd
AllisonBlass says (19:09):
Mine is January 27, 1994.
Ikonic says to (19:09):
I do... 10 days after my 16th birthday
Ikonic says to (19:09):
August 28, 2002
John4159 says to (19:09):
October 19, 1975
Brensdad says to (19:09):
We spent our wedding anniversary in the hospital when Emma was diagnosed
chelsea says to (19:09):
grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
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