Linking Diabetics Coast 2 Coast
Diabetes and Celiac chat with Catherine Oddenino
*** (16:57):Welcome to Diabetes and Celiac Disease , Catherine Oddenino !
jon says (16:58):
Hi Catherine!
Catherine Oddenino says to (16:58):
Hello!
jon says (16:58):
you are a couple of minutes early, hopefully the stragglers will start rolling in
Catherine Oddenino says to (16:59):
sounds good
jon says (17:05):
hi cantorbarbra
cantorbarbra says to (17:05):
Hi Jon
jon says (17:05):
it looks like we have a small group tonight
jon says (17:06):
do you have any questions for Catherine about Celiac disease?
jon says (17:07):
Catherine, can you tell me a little about your website?
cutie_pie says to (17:07):
can this deases be deadly?
Catherine Oddenino says to (17:08):
My site is focused on recipes, restaurant reviews and travel tips to make it easier for people with Celiac disease to manage the condition
cantorbarbra says to (17:09):
I don't have celiac, but found after giving birth to be gluten-sensitive. I'm always looking for great recipes and restaurants.
Catherine Oddenino says to (17:10):
It's definitely a complex prospect, trying to find out which foods and restaurants are "safe"
jon says (17:10):
how do you know which foods are safe for celiac?
Catherine Oddenino says to (17:10):
Especially when you have diabetes which requires so much attention to your diet already
Catherine Oddenino says to (17:10):
I use a variety of resources to determine which foods are safe
cutie_pie says to (17:11):
can you get diabetes from ciliac?
Catherine Oddenino says to (17:11):
Books and online resources were key to me finding out which things were sae
cantorbarbra says to (17:11):
What is your website Address Catherine?
Catherine Oddenino says to (17:12):
Diabetes and Celiac disease are both autoimmune disorders but there hasn't been any research showing that Celiac causes Diabetes or the reverse
Catherine Oddenino says to (17:12):
www.aglutenfreeguide.com
cantorbarbra says to (17:12):
Thanks. Iook forward to looking it up.
jon says (17:12):
Can you have celiac without having diabetes?
Catherine Oddenino says to (17:12):
Yes you can have Celiac without having diabetes
Catherine Oddenino says to (17:13):
cutie pie - Celiac Disease has many different symptoms depending on the person
cutie_pie says to (17:13):
i heard there are two trypes of this disorder? is that true?
Catherine Oddenino says to (17:13):
There is a much higher incidence of celiac disease in people with diabetes
Catherine Oddenino says to (17:13):
Two types of Celiac disease?
Catherine Oddenino says to (17:14):
Not in the same way there are two types of diabetes
cutie_pie says to (17:14):
yes
cutie_pie says to (17:14):
i heard there i sone with the allergy then the deases
Catherine Oddenino says to (17:15):
Yes there are some people who are allergic to gluten who don't necessarily have Celiac disease
cantorbarbra says to (17:15):
I think I'm gluten-sensitive since I was never tested positive for the disease.
Catherine Oddenino says to (17:15):
That's definitely a possibility
cutie_pie says to (17:15):
oh.. cause my family has diabetes and all th girls in our family have celiac
AllisonBlass says to (17:15):
Hello everyone! Hi Catherine!
Catherine Oddenino says to (17:15):
Hi Allison!
Catherine Oddenino says to (17:16):
Thanks for joining us
jon says (17:16):
how do they diagnose celiac?
Catherine Oddenino says to (17:17):
Most doctors first do an antibody test followed by an endoscopy
Catherine Oddenino says to (17:18):
It's important to get a proper diagnosis in case a medication is ever developed for Celiac disease in order to get health
insurance to cover the expense
AllisonBlass says to (17:18):
Catherine, I've read your blog a few times and I'm always impressed by how you have found so many restaurants that are celiac-friendly. How do you find them?
Catherine Oddenino says to (17:19):
Staying in tune to the various Celiac web sites, message boards and blogs
Catherine Oddenino says to (17:19):
Google searches, asking friends - everyone is a potential resource
jon says (17:20):
that must take a lot of time
Catherine Oddenino says to (17:20):
it does take quite a bit of time
Catherine Oddenino says to (17:20):
that's why I decided to start my site
Catherine Oddenino says to (17:20):
I wanted others to benefit from all of the research I was doing
jon says (17:20):
you don't find that kind of information in most restaraunts
cantorbarbra says to (17:21):
Sounds like a great idea.
Catherine Oddenino says to (17:21):
I have found many more restaurants being receptive in the last year
Catherine Oddenino says to (17:21):
I have had Celiac disease for 3.5 years now and it's MUCH easier than when I was first diagnosed
AllisonBlass says to (17:22):
Do you call ahead of time or do you just go?
Catherine Oddenino says to (17:22):
Some times I call ahead and sometimes I just go
Catherine Oddenino says to (17:22):
It depends on the cuisine, the menu and type of restaurant
cantorbarbra says to (17:23):
Whenever we travel, I always call the head chef ahead of time and always has gluten-free foods prepared for me.
Catherine Oddenino says to (17:23):
That's a great strategy
Catherine Oddenino says to (17:23):
A little bit of preparation can go a long way
jon says (17:23):
is there any kind of treatment for celiac other than avoiding gluten?
Catherine Oddenino says to (17:23):
No, not at this time
tammy2078 says to (17:24):
I agree with you Catherine. It is much easier to find gluten-free products today. I have had celiac disease for 10 years. It was quite difficult to find gluten-free products at first.
Catherine Oddenino says to (17:24):
I can only imagine how much more difficult it must have been 10 years ago
Catherine Oddenino says to (17:24):
Or in the years before the Internet was such a great resource
cantorbarbra says to (17:25):
Near where I live in NJ, there's a gluten-free store that opened up about a year ago.
Catherine Oddenino says to (17:25):
What is it called?
tammy2078 says to (17:25):
Yes, I remember eating bananas and rice when I was first diagnosed because I wasn't sure about anything else!
Catherine Oddenino says to (17:26):
I know a lot of people who just ate chicken and rice the first few weeks after they were diagnosed
Catherine Oddenino says to (17:27):
I felt like I received a gift as I found more and more things that I WAS able to eat right after I was diagnosed
cantorbarbra says to (17:28):
Gluten-Free Market in Fair Lawn, NJ. Mr. Ritt's sister is one of the owners.
Catherine Oddenino says to (17:28):
Ah yes, the NYC Meetup group has taken a few trips out there for all of the gluten-free goodies
Catherine Oddenino says to (17:28):
I haven't had a chance to visit yet
tammy2078 says to (17:29):
In my small city we now have ONE restaurant that has a gluten-free feature on their menu. It is very exciting. Also, I went to New York in February and I ate at a gluten-free restaurant. That was a thrill!!
cantorbarbra says to (17:29):
It's a little pricey, and I'm not always in the area, so I usually end up ordering online.
Catherine Oddenino says to (17:29):
where did you eat tammy?
Catherine Oddenino says to (17:30):
where do you live?
Catherine Oddenino says to (17:30):
barbra - what sites do you usually order from?
cantorbarbra says to (17:31):
glutenfreemall.com. I got pies for Thanksgiving that were great.
tammy2078 says to (17:31):
I ate at a restaurant called Pat and Mario's. This restaurant is privately owned therefore the owner decided to put a gluten-free feature in his menu! In Ontario, Canada!
Catherine Oddenino says to (17:31):
Glutenfreemall.com has a great variety of products
Catherine Oddenino says to (17:32):
that's great Tammy. If I make it up there I will check it out. Where did you eat in NYC?
cantorbarbra says to (17:32):
I also ordered products from glutenfree.com.
Catherine Oddenino says to (17:32):
That is another great site
Ellen5064 says to (17:33):
Do you ever use a bread machine that has a gluten free setting? I bought one but it's sitting in the box8-)
gina says to (17:33):
sorry im late
cantorbarbra says to (17:33):
I found a recipe for a gluten-free cake on allrecipes.com. I made the cake for Mother's Day and for my husband's birthday today. I do a little cake decorating. Everyone loved it.
gina says to (17:33):
i almost passed out at the gym from a low
cantorbarbra says to (17:33):
Sorry to hear that Gina.
gina says to (17:34):
hi catherine, thanks for coming to do this chat
Catherine Oddenino says to (17:34):
I don't eat enough bread to justify the cost of a breadmaker Ellen, but I know many people have had great success with the new generation of bread machines
Catherine Oddenino says to (17:34):
Could you send me a link to the recipe for the cake?
Catherine Oddenino says to (17:34):
My gluten-free cupcakes are one of the most popular things on my site
tammy2078 says to (17:34):
I'm sorry Catherine, I can't remember the name of the restaurant. The owner did tell me that a member of the Celiac association in N.Y. ate at his restaurant before she was celiac so the owner decided to devote one of his kitchens to celiac friendly meals
Catherine Oddenino says to (17:35):
hi Gina, I hope you are feeling better
cantorbarbra says to (17:35):
sure. Is your e mail address on your website? I'd love to try your cupcakes too.
gina says to (17:35):
catherine i dont have celiac but my friend does
Catherine Oddenino says to (17:35):
it is and the cupcakes are linked at the top
Ellen5064 says to (17:35):
I have to say, reading some of the food gf blogs, makes me realize how much people CAN eat, instead of focusing on all that's not ok
cantorbarbra says to (17:35):
Great. I'll send it to you later.
Catherine Oddenino says to (17:35):
absolutely - I eat more incredible foods than I ever did before
Catherine Oddenino says to (17:36):
of course I feel restricted at times but really my world has expanded
Catherine Oddenino says to (17:36):
thanks barbra
cantorbarbra says to (17:36):
One of the great benefits of cutting out gluten for me is that I haven't had a cold or a virus in a year. I don't catch anything from my children anymore!
Catherine Oddenino says to (17:37):
That's great that your immune system has responded so positively
Deb says to (17:37):
with the GF bakery items, do you find your after meal BG excursions higher than you'd like, but down to target 3-4 hours later? If yes, are there any bolus techniques you use?
gina says to (17:37):
catherine you live in new york right?
cantorbarbra says to (17:38):
Deb, have you tried a dual bolus?
Catherine Oddenino says to (17:38):
gluten-free baked goods require special dosing because they tend to have more carbs and more fat
Catherine Oddenino says to (17:38):
I always use a dual wave bolus
Ellen5064 says to (17:38):
I know some parents of children who have celiac and type 1 diabetes. Although those parents are negative for celiac antibodies, they claim they feel so much better living GF.
melissa says to (17:38):
Hi everyone
Catherine Oddenino says to (17:38):
I do live in NYC
gina says to (17:39):
are there any restaraunts you can recommend
Catherine Oddenino says to (17:39):
Hi Ellen, according to Dr. Green at the Columbia Celiac Disease Center, gluten is difficult for most people to digest even if they don't have Celiac
cantorbarbra says to (17:39):
Ellen, I go to a holistic Dr. and he said that most of our bodies whether we have celiac or not are not made for digesting gluten, which is why most people feel better without it.
gina says to (17:40):
Catherine i actually think i have a hard time digesting wheat etc.. eventhough i dont have celiac i was tested for it
Catherine Oddenino says to (17:40):
gina - I have links and reviews of MANY restaurants on my site - is there a particular type of food you are looking for?
Catherine Oddenino says to (17:40):
That's definitely possible gina
gina says to (17:40):
i was just curious to which one is your favorite i did see that on your site
gina says to (17:40):
now that you mentioned it
Deb says to (17:40):
dual bolus, yes . .splitting thoe dose, leading the meal wiht the bolus by greater than 20 minutes . . .all the tricks, (super bolus, etc.) but its still hard
Catherine Oddenino says to (17:40):
I couldn't possible pick a single one
gina says to (17:40):
haha
Catherine Oddenino says to (17:40):
it just depends on what I am in the mood for
gina says to (17:40):
we should meet up for dinner one day!
cantorbarbra says to (17:41):
catherine - here's a challenge. Do you know of any kosher GF restaurants in NYC?
Catherine Oddenino says to (17:41):
Where do you live gina?
gina says to (17:41):
NY
Ellen5064 says to (17:41):
So much of the celiac research comes out of Italy. Do you think there's a disproportionately high incidence of celiac in Italy? Or do they just raise the most brilliant researchers there?
melissa says to (17:41):
I find it hard to go out to eat with celiac. I usually eat the same things usually foods that are safe and become bored with going to the same resteraunts
AllisonBlass says to (17:41):
It seems like many of us are in the NYC area.... we should do a GF-free outing to see a place that Catherine recommends.
gina says to (17:41):
yea
gina says to (17:42):
that would be cool
cantorbarbra says to (17:42):
That would be great.
Catherine Oddenino says to (17:42):
barbra, I don't keep kosher, so I am not sure of a complete list but there is a deli in Chelsea Market that just launched a gluten-free menu that I am visiting on Sunday
melissa says to (17:42):
thats a good idea
gina says to (17:42):
Catherine what is the hardest part of having diabetes and celiac in your opinion
Catherine Oddenino says to (17:42):
There isn't a higher incidence of Celiac in Italy there is just higher awareness there
cantorbarbra says to (17:42):
Catherine - that would be great if you could let me know about it.
Ellen5064 says to (17:43):
Is the bread at Ethiopian restaurants gf and can you generally eat at Ethiopian restaurants? Hard to figure all the carbs eating there.
Catherine Oddenino says to (17:43):
melissa - where do you live? do you have the Triumph gluten-free dining cards?
melissa says to (17:43):
Im not sure if anyone lives on Long Island but in Plainview there is a really great Market that carries alot of gluten free foods. F
Catherine Oddenino says to (17:43):
gina - I think it's hard to figure out what the dosing requirements are of gluten-free baked goods
AllisonBlass says to (17:43):
Ellen, I know the bread is made with a unique rice found in Ethiopia... it's not wheat, but I don't know if it has gluten.
cantorbarbra says to (17:44):
I used to work on Long Island.
melissa says to (17:44):
Hi cathrine i live in NY
Catherine Oddenino says to (17:44):
and dealing with varied absorption rates when you are first diagnosed
gina says to (17:44):
cantor where are you from?
cantorbarbra says to (17:44):
Bergen County, New Jersey
tammy2078 says to (17:44):
Yes, Catherine there is much awareness regarding celiac disease in Italy. I was worried about taking a trip there but it was very celiac friendly. EVERY pharmacy had gluten-free products!
AllisonBlass says to (17:44):
Barbara, I live in Bergen too!
gina says to (17:44):
So figuring out gluten free baked goods is differen than regular bread?
cantorbarbra says to (17:45):
That's great Allison. Maybe we can meet up sometime.
Catherine Oddenino says to (17:45):
Ellen there is an Ethiopian restaurant in NYC that will make special gf teff bread if you give them notice, but the bread isn't necessarily gluten-free at all Ethiopian restaurants
gina says to (17:45):
Catherine is that downtown a green building?
Ellen5064 says to (17:45):
Oh good to know it's not all GF thanks.
Catherine Oddenino says to (17:46):
yes gf breads have different flours and fats so it can change the makeup
Catherine Oddenino says to (17:46):
they are usually heavier than gluten-filled breads
gina says to (17:46):
ah, its hard enough figuring it out without gluten
gina says to (17:46):
its almost like a double whammy
Catherine Oddenino says to (17:46):
indeed, it's a puzzle
gina says to (17:47):
have you gotten a lot of positive feedback on your site. you have a lot of great information on it
Ellen5064 says to (17:47):
What about Indian restaurants - they do serve a lot of bread and deep fried bready products like samosas. How do you protect yourself from cross contamination if you ask for dishes that are GF?
Catherine Oddenino says to (17:48):
I was featured in the NYTimes last year which was a wonderful surprise
Catherine Oddenino says to (17:48):
Cross- contamination is the biggest worry with baked goods
gina says to (17:48):
ah
Catherine Oddenino says to (17:48):
I always talk to my server or the manager to understand what will be safe
melissa says to (17:49):
Catherine do you know of any foods that have more iron then others. I recently found out I am anemic from the gf diet and the celiac and am on iron pills. I find that my stomach feels worse with it and also my dr rec eating alot of greens but i find
that m
Catherine Oddenino says to (17:49):
I am very careful at restaurants that focus on a lot of baked goods
Catherine Oddenino says to (17:49):
I take iron supplements but also eat a lot of leafy green vegetables
cantorbarbra says to (17:49):
Have you tried gentle iron by Solgar? That doesn't bother my stomach. My iron levels were also low for a while.
Catherine Oddenino says to (17:50):
My iron stores were down to almost nothing before I was diagnosed
Catherine Oddenino says to (17:50):
It took my stomach a few weeks before I was able to handle the supplements
melissa says to (17:50):
I take slow Fe The same just happend to me with the very low iron
Ellen5064 says to (17:50):
Does Floradix make a GF iron and herbs formula? Also, is it fairly common to have thyroid issues in addition to the celiac and diabetes?
melissa says to (17:51):
I am hoping that is what happens to me my body just has to get use to it
gina says to (17:51):
i think spinach has a lot of iron right?
Catherine Oddenino says to (17:51):
Thyroid is another autoimmune disorder so there tends to be a higher correlation
cantorbarbra says to (17:51):
Floradix does make a GF iron formula. I was on it for a while, but it was giving me diarrhea, so I switched to gentle iron.
cantorbarbra says to (17:52):
Spinach has a lot of iron, but it's best to eat it with vitamin C foods so that it is absorbed better.
melissa says to (17:52):
I read that it is common for celiac to be misdiagnosed with IBS
Catherine Oddenino says to (17:52):
and avoid calcium when you are taking the iron
Catherine Oddenino says to (17:53):
so I take my iron supplement an hour before eating any dairy products or taking any calcium supplements
AllisonBlass says to (17:53):
Hi Renee!!
cantorbarbra says to (17:53):
I have to take calcium and magnesium as I have osteopenia.
Catherine Oddenino says to (17:53):
I do too
gina says to (17:54):
what is osteopenia
Rmhb1126 says to (17:55):
Hi Catherine - it's Melissa's mom..hi Allison....
Catherine Oddenino says to (17:55):
a weakening of your bones
gina says to (17:55):
oh
gina says to (17:55):
i should have figured haha
cantorbarbra says to (17:55):
Osteopenia is the precursor to osteoporosis, thinning of the bones. My mother has severe osteoporosis, so I'm a candidate.
gina says to (17:56):
ah.
gina says to (17:56):
thanks
Catherine Oddenino says to (17:56):
frequently people with celiac disease are not absorbing nutrients such as iron or calcium and therefore can have reduced iron stores or weaker bones as a result
cantorbarbra says to (17:57):
I read somewhere that eating a diet with gluten can lead to osteoporosis.
Rmhb1126 says to (17:57):
Do you think more endocrinologists are finally screening all their type 1 patients for celiac? European studies from 20 yrs ago were recommending it & almost all recent studies have shown that type 1s are almost always asymptomatic so it's easily missed.
melissa says to (17:57):
I read that also and you have to supplement with iron and calcium
Catherine Oddenino says to (17:57):
If you are sensitive to gluten or have celiac it can cause damage to your digestive track that would inhibit absorption
gina says to (17:58):
Rmhb i was tested for it
Catherine Oddenino says to (17:58):
I know even my primary care physician is now screening people for Celiac disease more regularly
Pam says to (17:58):
Some pediatric endo. practices are still not screening for celiac.
Catherine Oddenino says to (17:58):
and she wasn't when I was diagnosed
cantorbarbra says to (17:58):
My endocrinologist at Columbia tested me for celiac 6 months ago. I told her it was a moot point as I already cut out gluten.
gina says to (17:58):
catherine where do you go
WestinsMom says to (17:58):
our endo started testing the entire clinic about 6 years ago...Westin was one of the first 3 in the clinic to come back positive, with no symptoms. He was officially diagnosed a few years later.
Catherine Oddenino says to (17:58):
but each doctor is different
Catherine Oddenino says to (17:59):
I see Dr. Carol Levy at Cornell
Pam says to (17:59):
Joslin in Boston does not unless there are symptoms
WestinsMom says to (17:59):
that is suprising
Pam says to (18:00):
I was shocked. A newly diagnosed family told me that today.
Ellen5064 says to (18:00):
cantorbarbara, what do you do about matzot on pesach? Does anyone make a gF one?
WestinsMom says to (18:00):
I guess my endo isn't so bad :)
AllisonBlass says to (18:00):
My doctors didn't test unless there was symptoms. I got tested my freshman year and came back negative, thankfully.
Catherine Oddenino says to (18:00):
www.glutenfreebay.blogspot.com has great tips for living kosher and gluten-free
Ellen5064 says to (18:01):
Thanks Catherine
cantorbarbra says to (18:01):
There is a gluten free matzah made of GF oat from England. I purchase it from a kosher food market in Fair Lawn, NJ. It's expensive, $29.00 a box, but worth it, so I can grind it up into matzah meal and cook with it.
WestinsMom says to (18:01):
seems like celiac is blowing up on the childrenwithdiabetes forums...tons of new dx
cantorbarbra says to (18:02):
Thanks Catherine. That's very helpful.
Ellen5064 says to (18:02):
Thanks CB
cantorbarbra says to (18:02):
You're welcome Ellen
jon says (18:03):
Our hour is up, so we won't take up any more of your time. Please come back and chat with us again!
Catherine Oddenino says to (18:03):
Thanks Jon!
Catherine Oddenino says to (18:03):
Thanks to everyone for coming out :)
cantorbarbra says to (18:03):
Thanks. It was great chatting with eveyrone.
Pam says to (18:03):
Thanks
Ellen5064 says to (18:03):
Thanks for the chat - sorry I came so late. How wonderful to have the opportunity to ask people with experience etc.
melissa says to (18:03):
Tahnk you for all of your information
jon says (18:03):
Thanks everybody for coming
Catherine Oddenino says to (18:03):
And visit my site and email me if you have any questions
Rmhb1126 says to (18:03):
hank YOU Catherine for making people more aware of the celiac/type connection
Catherine Oddenino says to (18:03):
www.aglutenfreeguide.com
Catherine Oddenino says to (18:04):
Thanks all! Have a great night
Ellen5064 says to (18:04):
I'll post the chat transcript at the CWD forums when it's ready.
Pam says to Sliderule (18:04):
Hey Slide
Catherine Oddenino says to (18:04):
Great Ellen, send me a link
Sliderule says to (18:04):
Pam: G'day.
Catherine Oddenino says to (18:04):
Night all
jon says (16:58):
Hi Catherine!
Catherine Oddenino says to (16:58):
Hello!
jon says (16:58):
you are a couple of minutes early, hopefully the stragglers will start rolling in
Catherine Oddenino says to (16:59):
sounds good
jon says (17:05):
hi cantorbarbra
cantorbarbra says to (17:05):
Hi Jon
jon says (17:05):
it looks like we have a small group tonight
jon says (17:06):
do you have any questions for Catherine about Celiac disease?
jon says (17:07):
Catherine, can you tell me a little about your website?
cutie_pie says to (17:07):
can this deases be deadly?
Catherine Oddenino says to (17:08):
My site is focused on recipes, restaurant reviews and travel tips to make it easier for people with Celiac disease to manage the condition
cantorbarbra says to (17:09):
I don't have celiac, but found after giving birth to be gluten-sensitive. I'm always looking for great recipes and restaurants.
Catherine Oddenino says to (17:10):
It's definitely a complex prospect, trying to find out which foods and restaurants are "safe"
jon says (17:10):
how do you know which foods are safe for celiac?
Catherine Oddenino says to (17:10):
Especially when you have diabetes which requires so much attention to your diet already
Catherine Oddenino says to (17:10):
I use a variety of resources to determine which foods are safe
cutie_pie says to (17:11):
can you get diabetes from ciliac?
Catherine Oddenino says to (17:11):
Books and online resources were key to me finding out which things were sae
cantorbarbra says to (17:11):
What is your website Address Catherine?
Catherine Oddenino says to (17:12):
Diabetes and Celiac disease are both autoimmune disorders but there hasn't been any research showing that Celiac causes Diabetes or the reverse
Catherine Oddenino says to (17:12):
www.aglutenfreeguide.com
cantorbarbra says to (17:12):
Thanks. Iook forward to looking it up.
jon says (17:12):
Can you have celiac without having diabetes?
Catherine Oddenino says to (17:12):
Yes you can have Celiac without having diabetes
Catherine Oddenino says to (17:13):
cutie pie - Celiac Disease has many different symptoms depending on the person
cutie_pie says to (17:13):
i heard there are two trypes of this disorder? is that true?
Catherine Oddenino says to (17:13):
There is a much higher incidence of celiac disease in people with diabetes
Catherine Oddenino says to (17:13):
Two types of Celiac disease?
Catherine Oddenino says to (17:14):
Not in the same way there are two types of diabetes
cutie_pie says to (17:14):
yes
cutie_pie says to (17:14):
i heard there i sone with the allergy then the deases
Catherine Oddenino says to (17:15):
Yes there are some people who are allergic to gluten who don't necessarily have Celiac disease
cantorbarbra says to (17:15):
I think I'm gluten-sensitive since I was never tested positive for the disease.
Catherine Oddenino says to (17:15):
That's definitely a possibility
cutie_pie says to (17:15):
oh.. cause my family has diabetes and all th girls in our family have celiac
AllisonBlass says to (17:15):
Hello everyone! Hi Catherine!
Catherine Oddenino says to (17:15):
Hi Allison!
Catherine Oddenino says to (17:16):
Thanks for joining us
jon says (17:16):
how do they diagnose celiac?
Catherine Oddenino says to (17:17):
Most doctors first do an antibody test followed by an endoscopy
Catherine Oddenino says to (17:18):
It's important to get a proper diagnosis in case a medication is ever developed for Celiac disease in order to get health
insurance to cover the expense
AllisonBlass says to (17:18):
Catherine, I've read your blog a few times and I'm always impressed by how you have found so many restaurants that are celiac-friendly. How do you find them?
Catherine Oddenino says to (17:19):
Staying in tune to the various Celiac web sites, message boards and blogs
Catherine Oddenino says to (17:19):
Google searches, asking friends - everyone is a potential resource
jon says (17:20):
that must take a lot of time
Catherine Oddenino says to (17:20):
it does take quite a bit of time
Catherine Oddenino says to (17:20):
that's why I decided to start my site
Catherine Oddenino says to (17:20):
I wanted others to benefit from all of the research I was doing
jon says (17:20):
you don't find that kind of information in most restaraunts
cantorbarbra says to (17:21):
Sounds like a great idea.
Catherine Oddenino says to (17:21):
I have found many more restaurants being receptive in the last year
Catherine Oddenino says to (17:21):
I have had Celiac disease for 3.5 years now and it's MUCH easier than when I was first diagnosed
AllisonBlass says to (17:22):
Do you call ahead of time or do you just go?
Catherine Oddenino says to (17:22):
Some times I call ahead and sometimes I just go
Catherine Oddenino says to (17:22):
It depends on the cuisine, the menu and type of restaurant
cantorbarbra says to (17:23):
Whenever we travel, I always call the head chef ahead of time and always has gluten-free foods prepared for me.
Catherine Oddenino says to (17:23):
That's a great strategy
Catherine Oddenino says to (17:23):
A little bit of preparation can go a long way
jon says (17:23):
is there any kind of treatment for celiac other than avoiding gluten?
Catherine Oddenino says to (17:23):
No, not at this time
tammy2078 says to (17:24):
I agree with you Catherine. It is much easier to find gluten-free products today. I have had celiac disease for 10 years. It was quite difficult to find gluten-free products at first.
Catherine Oddenino says to (17:24):
I can only imagine how much more difficult it must have been 10 years ago
Catherine Oddenino says to (17:24):
Or in the years before the Internet was such a great resource
cantorbarbra says to (17:25):
Near where I live in NJ, there's a gluten-free store that opened up about a year ago.
Catherine Oddenino says to (17:25):
What is it called?
tammy2078 says to (17:25):
Yes, I remember eating bananas and rice when I was first diagnosed because I wasn't sure about anything else!
Catherine Oddenino says to (17:26):
I know a lot of people who just ate chicken and rice the first few weeks after they were diagnosed
Catherine Oddenino says to (17:27):
I felt like I received a gift as I found more and more things that I WAS able to eat right after I was diagnosed
cantorbarbra says to (17:28):
Gluten-Free Market in Fair Lawn, NJ. Mr. Ritt's sister is one of the owners.
Catherine Oddenino says to (17:28):
Ah yes, the NYC Meetup group has taken a few trips out there for all of the gluten-free goodies
Catherine Oddenino says to (17:28):
I haven't had a chance to visit yet
tammy2078 says to (17:29):
In my small city we now have ONE restaurant that has a gluten-free feature on their menu. It is very exciting. Also, I went to New York in February and I ate at a gluten-free restaurant. That was a thrill!!
cantorbarbra says to (17:29):
It's a little pricey, and I'm not always in the area, so I usually end up ordering online.
Catherine Oddenino says to (17:29):
where did you eat tammy?
Catherine Oddenino says to (17:30):
where do you live?
Catherine Oddenino says to (17:30):
barbra - what sites do you usually order from?
cantorbarbra says to (17:31):
glutenfreemall.com. I got pies for Thanksgiving that were great.
tammy2078 says to (17:31):
I ate at a restaurant called Pat and Mario's. This restaurant is privately owned therefore the owner decided to put a gluten-free feature in his menu! In Ontario, Canada!
Catherine Oddenino says to (17:31):
Glutenfreemall.com has a great variety of products
Catherine Oddenino says to (17:32):
that's great Tammy. If I make it up there I will check it out. Where did you eat in NYC?
cantorbarbra says to (17:32):
I also ordered products from glutenfree.com.
Catherine Oddenino says to (17:32):
That is another great site
Ellen5064 says to (17:33):
Do you ever use a bread machine that has a gluten free setting? I bought one but it's sitting in the box8-)
gina says to (17:33):
sorry im late
cantorbarbra says to (17:33):
I found a recipe for a gluten-free cake on allrecipes.com. I made the cake for Mother's Day and for my husband's birthday today. I do a little cake decorating. Everyone loved it.
gina says to (17:33):
i almost passed out at the gym from a low
cantorbarbra says to (17:33):
Sorry to hear that Gina.
gina says to (17:34):
hi catherine, thanks for coming to do this chat
Catherine Oddenino says to (17:34):
I don't eat enough bread to justify the cost of a breadmaker Ellen, but I know many people have had great success with the new generation of bread machines
Catherine Oddenino says to (17:34):
Could you send me a link to the recipe for the cake?
Catherine Oddenino says to (17:34):
My gluten-free cupcakes are one of the most popular things on my site
tammy2078 says to (17:34):
I'm sorry Catherine, I can't remember the name of the restaurant. The owner did tell me that a member of the Celiac association in N.Y. ate at his restaurant before she was celiac so the owner decided to devote one of his kitchens to celiac friendly meals
Catherine Oddenino says to (17:35):
hi Gina, I hope you are feeling better
cantorbarbra says to (17:35):
sure. Is your e mail address on your website? I'd love to try your cupcakes too.
gina says to (17:35):
catherine i dont have celiac but my friend does
Catherine Oddenino says to (17:35):
it is and the cupcakes are linked at the top
Ellen5064 says to (17:35):
I have to say, reading some of the food gf blogs, makes me realize how much people CAN eat, instead of focusing on all that's not ok
cantorbarbra says to (17:35):
Great. I'll send it to you later.
Catherine Oddenino says to (17:35):
absolutely - I eat more incredible foods than I ever did before
Catherine Oddenino says to (17:36):
of course I feel restricted at times but really my world has expanded
Catherine Oddenino says to (17:36):
thanks barbra
cantorbarbra says to (17:36):
One of the great benefits of cutting out gluten for me is that I haven't had a cold or a virus in a year. I don't catch anything from my children anymore!
Catherine Oddenino says to (17:37):
That's great that your immune system has responded so positively
Deb says to (17:37):
with the GF bakery items, do you find your after meal BG excursions higher than you'd like, but down to target 3-4 hours later? If yes, are there any bolus techniques you use?
gina says to (17:37):
catherine you live in new york right?
cantorbarbra says to (17:38):
Deb, have you tried a dual bolus?
Catherine Oddenino says to (17:38):
gluten-free baked goods require special dosing because they tend to have more carbs and more fat
Catherine Oddenino says to (17:38):
I always use a dual wave bolus
Ellen5064 says to (17:38):
I know some parents of children who have celiac and type 1 diabetes. Although those parents are negative for celiac antibodies, they claim they feel so much better living GF.
melissa says to (17:38):
Hi everyone
Catherine Oddenino says to (17:38):
I do live in NYC
gina says to (17:39):
are there any restaraunts you can recommend
Catherine Oddenino says to (17:39):
Hi Ellen, according to Dr. Green at the Columbia Celiac Disease Center, gluten is difficult for most people to digest even if they don't have Celiac
cantorbarbra says to (17:39):
Ellen, I go to a holistic Dr. and he said that most of our bodies whether we have celiac or not are not made for digesting gluten, which is why most people feel better without it.
gina says to (17:40):
Catherine i actually think i have a hard time digesting wheat etc.. eventhough i dont have celiac i was tested for it
Catherine Oddenino says to (17:40):
gina - I have links and reviews of MANY restaurants on my site - is there a particular type of food you are looking for?
Catherine Oddenino says to (17:40):
That's definitely possible gina
gina says to (17:40):
i was just curious to which one is your favorite i did see that on your site
gina says to (17:40):
now that you mentioned it
Deb says to (17:40):
dual bolus, yes . .splitting thoe dose, leading the meal wiht the bolus by greater than 20 minutes . . .all the tricks, (super bolus, etc.) but its still hard
Catherine Oddenino says to (17:40):
I couldn't possible pick a single one
gina says to (17:40):
haha
Catherine Oddenino says to (17:40):
it just depends on what I am in the mood for
gina says to (17:40):
we should meet up for dinner one day!
cantorbarbra says to (17:41):
catherine - here's a challenge. Do you know of any kosher GF restaurants in NYC?
Catherine Oddenino says to (17:41):
Where do you live gina?
gina says to (17:41):
NY
Ellen5064 says to (17:41):
So much of the celiac research comes out of Italy. Do you think there's a disproportionately high incidence of celiac in Italy? Or do they just raise the most brilliant researchers there?
melissa says to (17:41):
I find it hard to go out to eat with celiac. I usually eat the same things usually foods that are safe and become bored with going to the same resteraunts
AllisonBlass says to (17:41):
It seems like many of us are in the NYC area.... we should do a GF-free outing to see a place that Catherine recommends.
gina says to (17:41):
yea
gina says to (17:42):
that would be cool
cantorbarbra says to (17:42):
That would be great.
Catherine Oddenino says to (17:42):
barbra, I don't keep kosher, so I am not sure of a complete list but there is a deli in Chelsea Market that just launched a gluten-free menu that I am visiting on Sunday
melissa says to (17:42):
thats a good idea
gina says to (17:42):
Catherine what is the hardest part of having diabetes and celiac in your opinion
Catherine Oddenino says to (17:42):
There isn't a higher incidence of Celiac in Italy there is just higher awareness there
cantorbarbra says to (17:42):
Catherine - that would be great if you could let me know about it.
Ellen5064 says to (17:43):
Is the bread at Ethiopian restaurants gf and can you generally eat at Ethiopian restaurants? Hard to figure all the carbs eating there.
Catherine Oddenino says to (17:43):
melissa - where do you live? do you have the Triumph gluten-free dining cards?
melissa says to (17:43):
Im not sure if anyone lives on Long Island but in Plainview there is a really great Market that carries alot of gluten free foods. F
Catherine Oddenino says to (17:43):
gina - I think it's hard to figure out what the dosing requirements are of gluten-free baked goods
AllisonBlass says to (17:43):
Ellen, I know the bread is made with a unique rice found in Ethiopia... it's not wheat, but I don't know if it has gluten.
cantorbarbra says to (17:44):
I used to work on Long Island.
melissa says to (17:44):
Hi cathrine i live in NY
Catherine Oddenino says to (17:44):
and dealing with varied absorption rates when you are first diagnosed
gina says to (17:44):
cantor where are you from?
cantorbarbra says to (17:44):
Bergen County, New Jersey
tammy2078 says to (17:44):
Yes, Catherine there is much awareness regarding celiac disease in Italy. I was worried about taking a trip there but it was very celiac friendly. EVERY pharmacy had gluten-free products!
AllisonBlass says to (17:44):
Barbara, I live in Bergen too!
gina says to (17:44):
So figuring out gluten free baked goods is differen than regular bread?
cantorbarbra says to (17:45):
That's great Allison. Maybe we can meet up sometime.
Catherine Oddenino says to (17:45):
Ellen there is an Ethiopian restaurant in NYC that will make special gf teff bread if you give them notice, but the bread isn't necessarily gluten-free at all Ethiopian restaurants
gina says to (17:45):
Catherine is that downtown a green building?
Ellen5064 says to (17:45):
Oh good to know it's not all GF thanks.
Catherine Oddenino says to (17:46):
yes gf breads have different flours and fats so it can change the makeup
Catherine Oddenino says to (17:46):
they are usually heavier than gluten-filled breads
gina says to (17:46):
ah, its hard enough figuring it out without gluten
gina says to (17:46):
its almost like a double whammy
Catherine Oddenino says to (17:46):
indeed, it's a puzzle
gina says to (17:47):
have you gotten a lot of positive feedback on your site. you have a lot of great information on it
Ellen5064 says to (17:47):
What about Indian restaurants - they do serve a lot of bread and deep fried bready products like samosas. How do you protect yourself from cross contamination if you ask for dishes that are GF?
Catherine Oddenino says to (17:48):
I was featured in the NYTimes last year which was a wonderful surprise
Catherine Oddenino says to (17:48):
Cross- contamination is the biggest worry with baked goods
gina says to (17:48):
ah
Catherine Oddenino says to (17:48):
I always talk to my server or the manager to understand what will be safe
melissa says to (17:49):
Catherine do you know of any foods that have more iron then others. I recently found out I am anemic from the gf diet and the celiac and am on iron pills. I find that my stomach feels worse with it and also my dr rec eating alot of greens but i find
that m
Catherine Oddenino says to (17:49):
I am very careful at restaurants that focus on a lot of baked goods
Catherine Oddenino says to (17:49):
I take iron supplements but also eat a lot of leafy green vegetables
cantorbarbra says to (17:49):
Have you tried gentle iron by Solgar? That doesn't bother my stomach. My iron levels were also low for a while.
Catherine Oddenino says to (17:50):
My iron stores were down to almost nothing before I was diagnosed
Catherine Oddenino says to (17:50):
It took my stomach a few weeks before I was able to handle the supplements
melissa says to (17:50):
I take slow Fe The same just happend to me with the very low iron
Ellen5064 says to (17:50):
Does Floradix make a GF iron and herbs formula? Also, is it fairly common to have thyroid issues in addition to the celiac and diabetes?
melissa says to (17:51):
I am hoping that is what happens to me my body just has to get use to it
gina says to (17:51):
i think spinach has a lot of iron right?
Catherine Oddenino says to (17:51):
Thyroid is another autoimmune disorder so there tends to be a higher correlation
cantorbarbra says to (17:51):
Floradix does make a GF iron formula. I was on it for a while, but it was giving me diarrhea, so I switched to gentle iron.
cantorbarbra says to (17:52):
Spinach has a lot of iron, but it's best to eat it with vitamin C foods so that it is absorbed better.
melissa says to (17:52):
I read that it is common for celiac to be misdiagnosed with IBS
Catherine Oddenino says to (17:52):
and avoid calcium when you are taking the iron
Catherine Oddenino says to (17:53):
so I take my iron supplement an hour before eating any dairy products or taking any calcium supplements
AllisonBlass says to (17:53):
Hi Renee!!
cantorbarbra says to (17:53):
I have to take calcium and magnesium as I have osteopenia.
Catherine Oddenino says to (17:53):
I do too
gina says to (17:54):
what is osteopenia
Rmhb1126 says to (17:55):
Hi Catherine - it's Melissa's mom..hi Allison....
Catherine Oddenino says to (17:55):
a weakening of your bones
gina says to (17:55):
oh
gina says to (17:55):
i should have figured haha
cantorbarbra says to (17:55):
Osteopenia is the precursor to osteoporosis, thinning of the bones. My mother has severe osteoporosis, so I'm a candidate.
gina says to (17:56):
ah.
gina says to (17:56):
thanks
Catherine Oddenino says to (17:56):
frequently people with celiac disease are not absorbing nutrients such as iron or calcium and therefore can have reduced iron stores or weaker bones as a result
cantorbarbra says to (17:57):
I read somewhere that eating a diet with gluten can lead to osteoporosis.
Rmhb1126 says to (17:57):
Do you think more endocrinologists are finally screening all their type 1 patients for celiac? European studies from 20 yrs ago were recommending it & almost all recent studies have shown that type 1s are almost always asymptomatic so it's easily missed.
melissa says to (17:57):
I read that also and you have to supplement with iron and calcium
Catherine Oddenino says to (17:57):
If you are sensitive to gluten or have celiac it can cause damage to your digestive track that would inhibit absorption
gina says to (17:58):
Rmhb i was tested for it
Catherine Oddenino says to (17:58):
I know even my primary care physician is now screening people for Celiac disease more regularly
Pam says to (17:58):
Some pediatric endo. practices are still not screening for celiac.
Catherine Oddenino says to (17:58):
and she wasn't when I was diagnosed
cantorbarbra says to (17:58):
My endocrinologist at Columbia tested me for celiac 6 months ago. I told her it was a moot point as I already cut out gluten.
gina says to (17:58):
catherine where do you go
WestinsMom says to (17:58):
our endo started testing the entire clinic about 6 years ago...Westin was one of the first 3 in the clinic to come back positive, with no symptoms. He was officially diagnosed a few years later.
Catherine Oddenino says to (17:58):
but each doctor is different
Catherine Oddenino says to (17:59):
I see Dr. Carol Levy at Cornell
Pam says to (17:59):
Joslin in Boston does not unless there are symptoms
WestinsMom says to (17:59):
that is suprising
Pam says to (18:00):
I was shocked. A newly diagnosed family told me that today.
Ellen5064 says to (18:00):
cantorbarbara, what do you do about matzot on pesach? Does anyone make a gF one?
WestinsMom says to (18:00):
I guess my endo isn't so bad :)
AllisonBlass says to (18:00):
My doctors didn't test unless there was symptoms. I got tested my freshman year and came back negative, thankfully.
Catherine Oddenino says to (18:00):
www.glutenfreebay.blogspot.com has great tips for living kosher and gluten-free
Ellen5064 says to (18:01):
Thanks Catherine
cantorbarbra says to (18:01):
There is a gluten free matzah made of GF oat from England. I purchase it from a kosher food market in Fair Lawn, NJ. It's expensive, $29.00 a box, but worth it, so I can grind it up into matzah meal and cook with it.
WestinsMom says to (18:01):
seems like celiac is blowing up on the childrenwithdiabetes forums...tons of new dx
cantorbarbra says to (18:02):
Thanks Catherine. That's very helpful.
Ellen5064 says to (18:02):
Thanks CB
cantorbarbra says to (18:02):
You're welcome Ellen
jon says (18:03):
Our hour is up, so we won't take up any more of your time. Please come back and chat with us again!
Catherine Oddenino says to (18:03):
Thanks Jon!
Catherine Oddenino says to (18:03):
Thanks to everyone for coming out :)
cantorbarbra says to (18:03):
Thanks. It was great chatting with eveyrone.
Pam says to (18:03):
Thanks
Ellen5064 says to (18:03):
Thanks for the chat - sorry I came so late. How wonderful to have the opportunity to ask people with experience etc.
melissa says to (18:03):
Tahnk you for all of your information
jon says (18:03):
Thanks everybody for coming
Catherine Oddenino says to (18:03):
And visit my site and email me if you have any questions
Rmhb1126 says to (18:03):
hank YOU Catherine for making people more aware of the celiac/type connection
Catherine Oddenino says to (18:03):
www.aglutenfreeguide.com
Catherine Oddenino says to (18:04):
Thanks all! Have a great night
Ellen5064 says to (18:04):
I'll post the chat transcript at the CWD forums when it's ready.
Pam says to Sliderule (18:04):
Hey Slide
Catherine Oddenino says to (18:04):
Great Ellen, send me a link
Sliderule says to (18:04):
Pam: G'day.
Catherine Oddenino says to (18:04):
Night all
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